Ziauddin University Toolkit for Patient & Public Involvement and Engagement (PPIE)

This interactive toolkit is intended as a resource to support the establishment of Patient & Public Involvement and Engagement (PPIE) initiatives within health research teams and projects. While focused on a national PPIE network in Pakistan led by the Critical Care Research Group (CCRG) of Ziauddin University, the toolkit provides useful resources and guidance for anyone seeking to involve patients, their families and members of the public in health research.

The toolkit is divided into an introduction, 10 chapters and a conclusion. The introduction defines PPIE and provides background to the national PPIE network. The first chapter gives an overview of the process of establishing a PPIE initiative with subsequent chapters offering detailed guidance for every step in the process. Links to editable examples and worksheets are included as appendices in relevant chapters. A PDF version of the entire toolkit and all appendices are freely available for download here.

The advice provided in the toolkit is based on the experiences of our group in establishing the first-ever PPIE group in Pakistan to support trials, supporting the formation of PPIE groups at other institutions across Pakistan and South Asia, and learning from global engagement initiatives. Any suggestions for improvements are welcome. Feel free to amend and adapt all aspects of this toolkit for your own purposes in any way you wish, however, make sure to appropriately credit the creators as per the license below. Do not hesitate to get in touch with us at ppie@zu.edu.pk.