The National Institute of Health Research (NIHR) are the UK’s largest funder of health and care research and provides the people, facilities and technology that enables research to thrive. They work with a range of stakeholders to deliver and enable world-class research that transforms people's lives, promotes economic growth and advances science. One of NIHR’s key aims is to continue to involve patients, carers and the public in their work. 

Over the last few years NIHR’s Global Health research portfolio has continued to develop at pace, underpinned by a strong commitment by all stakeholders to embed meaningful community engagement and involvement (CEI) across the full spectrum of this funding programme. To search funded projects, please visit the Funding and Awards page (make sure to select ‘Global Health’ from the drop down menu in the Search bar). 

To help NIHR gain more insight on CEI in low- and middle-income countries (LMICs) and connect the organisation to the wider community engagement network, they have created the NIHR Global Health CEI Advisory Network.

NIHR Global Health Community Engagement & Involvement (CEI) Advisory Network

The NIHR Global Health CEI Advisory Network is an invited group of academics, researchers, patients, carers and members of the public with knowledge and experience of public involvement in research and community engagement in LMICs. The purpose of the Network is: to share knowledge and experience around CEI; to provide advice on NIHR’s CEI strategy and operation; and to act as enablers to support the NIHR with connecting to the wider research community. 

Since its creation in July 2019 the NIHR Global Health CEI Advisory Network, as a global collaborative shared learning space, has played an important role in supporting the development of CEI in NIHR’s global health work. The Network members include representation from charities and universities based both in the Global North and the Global South. All members share an interest in CEI but other research interests range from epidemiology to mental health to social anthropology.

For a full list of the Advisory Network members, please click HERE

Vision for the future

The Advisory Network has a hub on Mesh including a virtual space to host discussions and this area to share learning and resources. They aim to highlight CEI papers and resources that have been created and written by Network members and will share their learning with the wider Mesh community.

If you would like to know more information about the Advisory Network, please contact Katie Porter at ceiglobalhealth@nihr.ac.uk

Resources

A Resource Guide for Community Engagement and Involvement in Global Health Research

Developed for the NIHR Research and Innovation for Global Health Transformation (RIGHT) programme in collaboration with Erica Nelson, one of the Advisory Network members

International Patient and Public Involvement (PPI) Network

Network members collaborate with the International PPI Network, who have developed a Cochrane Learning Live webinar series dedicated to the topic of PPI in health and social care research. Previous topics include, building trust and sharing power for co-creation in Aboriginal health research and stakeholder involvement in evidence synthesis

INVOLVE Resource Centre

INVOLVE is funded by the NIHR to support active public involvement in health and social care research. Their website provides a variety of resources, including guidance and case studies, for both researchers and public members

 

Advisory Network members

  • Professor Pamela Abbott - Director of the Centre for Global Development and Professor in the School of Education, University of Aberdeen

  • Dr Julie Bayley - Director of Research Impact Development, University of Lincoln

  • Dr Steven Blackburn - Patient and Public Involvement and Engagement Regional Lead for Public Involvement in Research, NIHR Research Design Service West Midlands

  • Dr Mary Chambers - Head of Public Engagement with Science, Oxford University Clinical Research Unit (OUCRU) 

  • Dr Phaik Yeong Cheah - Associate Professor of Oxford University and Head of the Department of Bioethics and Engagement (based in Bangkok at the Wellcome Programme)

  • Professor Moses Chimbari - Research Professor at University of KwaZulu-Natal and co-deputy Director of Tacking Infections to Benefit Africa (TIBA) project

  • Dr Ava Easton - Chief Executive of the Encephalitis Society

  • Carrie Hough - Evaluation Manager, Global Health Research, Department of Health and Social Care 

  • Dr Dorcas Kamuya - Researcher in Ethics and Community Engagement, KEMRI-Wellcome Trust Research Programme

  • Dr Shelley Lees - Associate Professor in Anthropology of Gender, Violence and HIV, London School of Hygiene and Tropical Medicine

  • Dr Anthea Lesch - Lecturer in Psychology of Health and Health behaviour,  Stellenbosch University

  • Saumu Lwembe - Senior Programme Manager, Patient and Public Involvement and Engagement (PPIE), NIHR Central Commissioning Facility (CCF)

  • Noni Mumba - Head of Community Engagement, KEMRI-Wellcome Trust Research Programme

  • Dr Rosemary Musesengwa - Postdoctoral researcher with the Global Initiative in Neuropsychiatric GenEthics- NeuroGenE at the Department of Psychiatry, Oxford University and with the Wellcome Centre for Ethics & Humanities

  • Dr Erica Nelson - Research Fellow at London School of Hygiene and Tropical Medicine and Research Fellow at the Institute of Development Studies (IDS)

  • Dr Vanessa Pinfold - Co-founder and Research Director, McPin Foundation

  • Katie Porter - Assistant Research Manager, Patient and Public Involvement (PPI), NIHR Evaluation, Trials and Studies Coordinating Centre (NETSCC)

  • Stephanie Russell - Senior Research Manager, Global Health Research, NETSCC

  • Dr Bella Starling - Co-director of Public Programmes at Manchester University Hospitals NHS Foundation Trust and Wellcome Trust Engagement Fellow

  • Sabeena Subba - Assistant Director, PPIE, NIHR CCF

  • Heidi Surridge - Research Manager, PPI, NETSCC

  • Doreen Tembo - Senior Research Manager, PPI, NETSCC

  • Sanjog Thakuri - Freelancer Consultant on Child Participation, Governance and Professional and Organizational Development

  • Katalin Torok - Senior Programme Manager, PPIE, NIHR CCF

  • Dr Robin Vincent - Freelance Learning and Evaluation Consultant

  • Jon Cole - Assistant Director, Public Involvement and External Engagement, NETSCC

NIHR CEI Working Group

The Advisory Network provides advice to and supports the work of the NIHR CEI Working Group - a group that brings together the PPI leads from different NIHR coordinating centres and includes representation from the NIHR Global Health Research programme. Members include:

  • Krishna De - Assistant Director, Communications, Involvement and Development, NIHR Academy 

  • Chichi Ezenwa - Programme Manager, Global Health, NIHR Central Commissioning Facility (CCF)

  • Gary Hickey - Senior Public Involvement Manager, INVOLVE

  • Carrie Hough -  Evaluation Manager, Global Health Research, Department of Health and Social Care (DHSC)

  • Saumu Lwembe - Senior Programme Manager, Patient and Public Involvement and Engagement (PPIE), CCF

  • Martin Mulenga - Senior Research Manager, Global Health Research, NIHR Evaluation, Trials and Studies Coordinating Centre (NETSCC)

  • Linda Onerhime - Patient and Public Involvement (PPI) Manager, NIHR Academy

  • Katie Porter - Assistant Research Manager, PPI, NETSCC

  • Stephanie Russell - Senior Research Manager, Global Health Research, NETSCC

  • Sabeena Subba - Assistant Director, PPIE, NIHR CCF

  • Heidi Surridge - Research Manager, PPI, NETSCC

  • Doreen Tembo - Senior Research Manager, PPI, NETSCC

  • Aaronjay Tidball - Global Health Research Programme Manager, DHSC

  • Katalin Torok - Senior Programme Manager, PPIE, NIHR CCF