Literature: Trust and Health Research in Developing Countries: Summary of the issues (Wellcome Trust, 2013)by Wellcome Trust
This literature review was written by Dorcus Kamuya for the Wellcome Trust's fifth international engagement workshop. It focuses on trust in the context of health research in developing countries and highlights a range of challenges affecting levels of trust.
This report is based on conversations that took place at the Fifth Wellcome Trust International Public Engagement Workshop ‘Trust Me I Am a Scientist: Exploring the role of trust within international health research’, held in November 2013. The workshop aimed to reach a clearer understanding of what is involved in developing and maintaining trust among relevant actors and groups engaged in international biomedical research, and the implications of this for strengthening community and public engagement strategies.
This toolbox was developed for the World Health Organisation COVID-19 Research Roadmap and shares information on establishing and working with different types of Community Advisory Boards/Groups (CAB/Gs) in the context of COVID-19 clinical studies.
This tool, developed by the site staff of the Microbicide Development Program in Tanzania, can be used to help community, trial participants, or staff members, prioritize issues and concerns central to the trial. This tool can serve as a platform to generate a list of potential issues and provide direction for what or which issues should take priority at the research site.
Using this tool, participants can raise and explore issues they perceive as priorities in HIV prevention research; discovering links between them. An interactive and fun way for community members and participants to be involved with the planning of HIV prevention research at the site.
Although Ebola-related stigmatization continues to undermine efforts to re-integrate survivors, few studies have examined what influences such stigmatizing attitudes. This paper explores the effects of both individual- and community-level factors on Ebola-related stigma in Ghana.
Published Literature: Rumours, Riots and the rejection of mass drug administration for the treatment of schistosomiasis in Morogoro, Tanzaniaby Julie Hastings, Mesh Editorial Team
This article from 2016 in the Journal of Biosocial Science outlines the case of a mass drug administration programme in Tanzania which had to be suspened after community riots
Guide: Empowering meaningful community engagement and involvement in global health research - critical reflections and guiding questionsby Erica Nelson, NIHR
This learning resource, from the UK's NIHR published in collaboration with the Institute of Development Studies, offers a brief set of reflections to help guide decision-making within the context of collaborative research approaches. It was published in March 2021 reflecting on the COVID-19 pandemic.
SSHAP (the Social Science in Humanitarian Action Platform) is a programme of work focusing on the social dimensions of emergency responses. Their site has an excellent resource page with COVID-19 as a search topic
Academic literature: Trust, fear, stigma and disruptions: community perceptions and experiences during periods of low but ongoing transmission of Ebola virus disease in Sierra Leone, 2015by Nuriddin et al, 2018, Mesh Editorial Team
This paper summarises a project based in Sierra Leone during the 2014-15 Ebola outbreak that produced a set of culturally contextualised Ebola messages. The messages are based on findings from interviews and focus group discussions with community members from two Ebola ‘hot-spots’.
Literature: From ‘Trial Community’ to ‘Experimental Publics’: How Clinical Research Shapes Public Participationby C. Montgomery & R. Pool, Mesh Editorial Team
This article argues for a conceptual shift away from the static, singular term ‘trial community’ towards ‘experimental publics’. The authors observe that the term ‘community’ is often employed uncritically and assumes that ‘communities’ pre-exist research; that they are timeless and undifferentiated wholes. ‘Experimental publics’, by contrast, are dynamic, multiple, and impermanent in nature.