The Genomics of Schizophrenia in South African Xhosa People (SAX) study sought to identify genes or mutations underlying predisposition to schizophrenia in the South African Xhosa population. Engagement activities included a Community Advisory Board and a Mental Health Literacy Day.
This article addresses community engagement around the COVID-19 outbreak in South Africa in April 2020 and proposes a free-to-use mobile app as well as a longer-term Community Engagement Nerve Centre for the country
Literature: From ‘Trial Community’ to ‘Experimental Publics’: How Clinical Research Shapes Public Participationby C. Montgomery & R. Pool, Mesh Editorial Team
This article argues for a conceptual shift away from the static, singular term ‘trial community’ towards ‘experimental publics’. The authors observe that the term ‘community’ is often employed uncritically and assumes that ‘communities’ pre-exist research; that they are timeless and undifferentiated wholes. ‘Experimental publics’, by contrast, are dynamic, multiple, and impermanent in nature.
This paper may be of interest to readers thinking about the local political and historical context and how this impacts on both science culture and the culture of science communication or public engagement within a country. This article focuses on South Africa although many of the considerations within it are likely to be pertinent in other countries which experienced colonialism.
Published Literature: Introducing participatory visual methods to develop local knowledge on HIV in rural south africaby Mesh Editorial Team
This paper reports a study into the insights and perspectives of rural South African communities on HIV- related mortality. The aim of the study was to elicit local knowledge in order to identify priorities for service organisations to improve health.