Project Report: Community Engagement in the Collaborative African Genomics Network (CAfGEN)by Thato Vinette Regonamanye, Dr. Mogomotsi Matshaba
The Collaborative African Genomics Network (CAfGEN) is a H3Africa affiliate and National Institutes of Health (NIH) funded study coordinated at Botswana-Baylor Children’s Clinical Centre of Excellence. This article describes their approach to community engagement.
Guide: Working with journalists and the mediaby Cynthia Nyanduko Mauncho, Lindiwe Mafuleka
This article shares documents on working with journalists and the media from the perspective of a research programme, including through Media Advisory Groups and a Journalists in Residence program
Project Report: The Genomics of Schizophrenia in South African Xhosa people (SAX) studyby Megan Campbell, Adele Pretorius
The Genomics of Schizophrenia in South African Xhosa People (SAX) study sought to identify genes or mutations underlying predisposition to schizophrenia in the South African Xhosa population. Engagement activities included a Community Advisory Board and a Mental Health Literacy Day.
Literature: Who should decide about children’s and adolescents’ participation in health research?by Mesh Editorial Team
This paper from BMC Medical Ethics explores how researchers and research centres can activtly involve children and young people in health research activities and in the development of research proposals. They used group discussions with community members and schools students in rural Kenya to explore views on the topic.
Project Report: The Tak Province Border Community Ethics Advisory Board (T-CAB)by Natinee Kulpijit, Napat Khirikoekkong
Project Report: TrypanoGENby Mesh Editorial Team
Project Report: Confluence of the Old and New: Understanding Resistance to New Born Screening in Nigeriaby Adebolajo Adeyemo
Project Report: Angkor Hospital for Children’s Young Persons Advisory Groupby Claudia Turner, Sreymom pol
An introduction to the work of the Angkor Hospital for Children’s (AHC) Young Persons Advisory Group, a group of young Cambodians (aged 10 – 15 years) who meet monthly to discuss important operational and research issues arising from the AHC management.