Researchers funded by the NIHR Global Health Research Programme are expected to involve patients and the public in planning, implementation and evaluation of their research. This resource guide provides community engagement links, resources, references and learning to offer research teams and funding applicants a starting point
The International Network for Public Involvement and Engagement in Health and Social Care Research was launched in London on 27th November 2017. Our vision is for a world where patient and public involvement is an integral part of health research.
Guide: San people of Africa code of ethics for researchers
by South African San InstituteA code of ethics created by the San people of Africa for researchers wishing to study their culture.
Guide: Community Stakeholder Engagement (CSE) Monitoring Toolkit
by Engagement for ImpactThis user friendly set of quantitative and qualitative monitoring and evaluation tools allows users to capture, collate and analyze Community and Stakeholder Engagement (CSE) data at the clinical trial site-level. The database is designed to support engagement teams working on clinical trials on a daily, monthly, quarterly and biannual basis.
Guide: Recommendations for Community Engagement in HIV/AIDS Research Version 2.0
by Mesh Editorial BoardThese recommendations are intended as a tool to help research staff and community representatives expand and deepen existing partnerships, and forge new ones, with the ultimate goal of facilitating effective community engagement in all aspects of clinical trials research.
Literature: Engaging diverse communities participating in clinical trials: case examples from across Africa
by Mesh Editorial TeamThis article focuses on community engagement activities employed at various AMANET-supported clinical trial sites in different countries, highlighting subtle differences in the approaches used. The paper also gives some general pros and cons of community engagement.