This report from Hilo Consultants Ltd outlines the key themes arising from a workshop session held in October 2020 which sought to look at ways of supporting strong practice in engagement within clinical trials.
The International Network for Public Involvement and Engagement in Health and Social Care Research was launched in London on 27th November 2017. Our vision is for a world where patient and public involvement is an integral part of health research.
Literature: Planning for the social and economic impacts emerging from school-university engagement with researchby Mesh Editorial Team
In this article from the Journal of Science Communication (2015) the authors reflect on their work with teachers and students at a local school in Milton Keynes in the UK. They propose a flexible and adaptive metric to support all stakeholders with planning school engagement.
This paper from BMC Medical Ethics explores how researchers and research centres can activtly involve children and young people in health research activities and in the development of research proposals. They used group discussions with community members and schools students in rural Kenya to explore views on the topic.
This 2019 report was commissioned by the Wellcome Trust to catalyse future discussion amongst a broad set of stakeholders about ways of strengthening community and public engagement in global health
This study, which took place in the U.S, may be of interest to Mesh readers interested in the power of 'community voice' on decision-making in health policy and research.
A summary of a report exploring Community Engagement, what it means to global health researchers and its relationship to research ethics.
Article: Community Engagement for the Rapid Elimination of Malaria: the Case of Kayin State, Myanmarby Mesh Editorial Team
This article outlines Community Engagement efforts linked to a Targeted Malaria Elimination (TME) project in four Kayin State villages, in Myanmar where there is a real threat from the spread of drug resistant parasites. The Community Engagement programme was aimed at promoting population uptake and adherence to Mass drug administrations (MDA) in the region.
Organisations that undertake research, engagement and policy work are dominated by white middle-class men. The basic question the book attempts to answer is: "what happens when these institutions attempt working with the rest of the world, which is different and diverse?”
Literature: Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme (Kilifi, Kenya)by Mesh Editorial Team
An article published in Social Science & Medicine summarising the rationale for community engagement in research. The article draws upon published literature and local findings to outline the process of community engagement in Kilifi, Kenya and to describe issues emerging from its development and early implementation. It also briefly reviews literature on Community Advisory Boards and a range of related ethical, methodological and contextual issues related to developing effective methods for community engagement.