This study, which took place in the U.S, may be of interest to Mesh readers interested in the power of 'community voice' on decision-making in health policy and research.
A toolkit of methods and guidance on collaborative decision making and community planning.
A summary of a report exploring Community Engagement, what it means to global health researchers and its relationship to research ethics.
Article: Community Engagement for the Rapid Elimination of Malaria: the Case of Kayin State, Myanmarby Mesh Editorial Team
Organisations that undertake research, engagement and policy work are dominated by white middle-class men. The basic question the book attempts to answer is: "what happens when these institutions attempt working with the rest of the world, which is different and diverse?”
Samala Moyo is an interactive exhibition with an outreach component designed to open the Malawi–Liverpool– Wellcome Trust Clinical Research Programme (MLW) to the local community and creatively explore crucial topics in medical research. The project was developed from a small International Engagement Award-funded pilot project and subsequently received £188,000.
This user friendly set of quantitative and qualitative monitoring and evaluation tools allows users to capture, collate and analyze Community and Stakeholder Engagement (CSE) data at the clinical trial site-level. The database is designed to support engagement teams working on clinical trials on a daily, monthly, quarterly and biannual basis.
Literature: Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme (Kilifi, Kenya)by Mesh Editorial Team
An article published in Social Science & Medicine summarising the rationale for community engagement in research. The article draws upon published literature and local findings to outline the process of community engagement in Kilifi, Kenya and to describe issues emerging from its development and early implementation. It also briefly reviews literature on Community Advisory Boards and a range of related ethical, methodological and contextual issues related to developing effective methods for community engagement.
These recommendations are intended as a tool to help research staff and community representatives expand and deepen existing partnerships, and forge new ones, with the ultimate goal of facilitating effective community engagement in all aspects of clinical trials research.