Researchers funded by the NIHR Global Health Research Programme are expected to involve patients and the public in planning, implementation and evaluation of their research. This resource guide provides community engagement links, resources, references and learning to offer research teams and funding applicants a starting point
The International Network for Public Involvement and Engagement in Health and Social Care Research was launched in London on 27th November 2017. Our vision is for a world where patient and public involvement is an integral part of health research.
Literature: Planning for the social and economic impacts emerging from school-university engagement with research
by Mesh Editorial TeamIn this article from the Journal of Science Communication (2015) the authors reflect on their work with teachers and students at a local school in Milton Keynes in the UK. They propose a flexible and adaptive metric to support all stakeholders with planning school engagement.
Literature: Who should decide about children’s and adolescents’ participation in health research?
by Mesh Editorial TeamThis paper from BMC Medical Ethics explores how researchers and research centres can activtly involve children and young people in health research activities and in the development of research proposals. They used group discussions with community members and schools students in rural Kenya to explore views on the topic.
INTRAC has launched the M&E universe, a free, online resource for development practitioners involved in monitoring and evaluation (M&E).
This 2019 report was commissioned by the Wellcome Trust to catalyse future discussion amongst a broad set of stakeholders about ways of strengthening community and public engagement in global health
Community Health Decision-Making: The Power of Focus Groups in Rural Communities
by Mesh Editorial TeamThis study, which took place in the U.S, may be of interest to Mesh readers interested in the power of 'community voice' on decision-making in health policy and research.
Community Planning Toolkit: Community Engagement
by Mesh Editorial TeamA toolkit of methods and guidance on collaborative decision making and community planning.
Workshop Report: ‘Community Engagement – Under the Microscope’ in Thailand in June 2011
by Mesh Editorial TeamA summary of a report exploring Community Engagement, what it means to global health researchers and its relationship to research ethics.
Article: Community Engagement for the Rapid Elimination of Malaria: the Case of Kayin State, Myanmar
by Mesh Editorial TeamThis article outlines Community Engagement efforts linked to a Targeted Malaria Elimination (TME) project in four Kayin State villages, in Myanmar where there is a real threat from the spread of drug resistant parasites. The Community Engagement programme was aimed at promoting population uptake and adherence to Mass drug administrations (MDA) in the region.
Project Report: Engagement in the H3Africa Consortium
by Mesh Editorial TeamLiterature: People’s Knowledge and Participatory Action Research Book
by Practical Action PublishingOrganisations that undertake research, engagement and policy work are dominated by white middle-class men. The basic question the book attempts to answer is: "what happens when these institutions attempt working with the rest of the world, which is different and diverse?”
Project Report: Samala Moyo
by Malawi–Liverpool– Wellcome Trust Clinical Research ProgrammeSamala Moyo is an interactive exhibition with an outreach component designed to open the Malawi–Liverpool– Wellcome Trust Clinical Research Programme (MLW) to the local community and creatively explore crucial topics in medical research. The project was developed from a small International Engagement Award-funded pilot project and subsequently received £188,000.
Guide: Community Stakeholder Engagement (CSE) Monitoring Toolkit
by Engagement for ImpactThis user friendly set of quantitative and qualitative monitoring and evaluation tools allows users to capture, collate and analyze Community and Stakeholder Engagement (CSE) data at the clinical trial site-level. The database is designed to support engagement teams working on clinical trials on a daily, monthly, quarterly and biannual basis.
Literature: Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme (Kilifi, Kenya)
by Mesh Editorial TeamAn article published in Social Science & Medicine summarising the rationale for community engagement in research. The article draws upon published literature and local findings to outline the process of community engagement in Kilifi, Kenya and to describe issues emerging from its development and early implementation. It also briefly reviews literature on Community Advisory Boards and a range of related ethical, methodological and contextual issues related to developing effective methods for community engagement.
Guide: Recommendations for Community Engagement in HIV/AIDS Research Version 2.0
by Mesh Editorial BoardThese recommendations are intended as a tool to help research staff and community representatives expand and deepen existing partnerships, and forge new ones, with the ultimate goal of facilitating effective community engagement in all aspects of clinical trials research.