Literature: Trust and Health Research in Developing Countries: Summary of the issues (Wellcome Trust, 2013)by Wellcome Trust
This literature review was written by Dorcus Kamuya for the Wellcome Trust's fifth international engagement workshop. It focuses on trust in the context of health research in developing countries and highlights a range of challenges affecting levels of trust.
This report is based on conversations that took place at the Fifth Wellcome Trust International Public Engagement Workshop ‘Trust Me I Am a Scientist: Exploring the role of trust within international health research’, held in November 2013. The workshop aimed to reach a clearer understanding of what is involved in developing and maintaining trust among relevant actors and groups engaged in international biomedical research, and the implications of this for strengthening community and public engagement strategies.
Although Ebola-related stigmatization continues to undermine efforts to re-integrate survivors, few studies have examined what influences such stigmatizing attitudes. This paper explores the effects of both individual- and community-level factors on Ebola-related stigma in Ghana.
This series of pre-recorded panel discussions form part of EBODAC's virtual event exploring acceptance and uptake of new Ebola vaccines. They include sessions on 'Trust & Community Engagement' as well as 'Rumour Management'.
This blog style project reflection from Village Reach gives an introduction to the different aspects of their research project exploring barriers to vaccination in Mozambique.
Academic Literature: Whose knowledge counts? Exploring cognitive justice in community-university collaborations.by Siân Aggett, Mesh Editorial Team
Engaging with Social justice: An Interview with Ceri Davies, Research Director, National Centre for Social Researchby Siân Aggett, Mesh Editorial Team
This paper summarises a project based in Sierra Leone during the 2014-15 Ebola outbreak that produced a set of culturally contextualised Ebola messages. The messages are based on findings from interviews and focus group discussions with community members from two Ebola ‘hot-spots’.
Literature: The role of community engagement for participation in mass antimalarial administration. Findings from Targeted Malaria Elimination studies in Lao PDR (Laos).by Adhikari et al. , Mesh Editorial Team
This article summarises the findings of three separate research papers by Adhikari et al., which explore the role of community engagement for participation in mass antimalarial administration during a Targeted Malaria Elimination (TME) projects in Lao PDR (Laos).
Literature: Elements of effective community engagement: lessons from a targeted malaria elimination study in Lao PDR (Laos)by Adhikari et al. , Mesh Editorial Team
This article draws on experience of designing and implementing community engagement in Laos for Targeted Malaria Elimination (TME). It identifies five key elements of effective community engagement for mass antimalarial administration in this setting.
Literature: Factors associated with population coverage of targeted malaria elimination (TME) in southern Savannakhet Province, Lao PDR (Laos)by Bipin Adhikari, Mesh Editorial Team
This article reports the findings of a quantitative study conducted after the completion of a Targeted Malaria Elimination (TME) project in Lao PDR (Laos). The study aimed to explore reasons for individuals’ participation in the TME project.
Literature: Why do people participate in mass antimalarial administration? Findings from a qualitative study in Nong District, Savannakhet Province, Lao PDR (Laos).by Bipin Adhikari, Mesh Editorial Team
This article draws on qualitative data to explore the factors that led to high population coverage (>87%) of mass drug administration (MDA) as part of targeted malaria elimination (TME)* in the Greater Mekong sub-region of South East Asia. It looks at the community engagement and education activities (including health education through theatre, posters, village meetings, and house-to-house visits) were undertaken to promote the uptake of MDA in target communities.
Mesh Podcast: How can Engagement Practitioners make themselves more Trustworthy in the case of Vaccination?by Mesh Editorial Team
This Podcast explores the power of trust between communities who are hesitant towards vaccines, and the public health community who are delivering immunisation. Dr Heidi Larson gives an in-depth analysis of the pitfalls and challenges in tackling this issue.
This short podcast examines the role provided by engagement practitioners in preparing for and responding to epidemic outbreak.
The Wellcome Trust commissioned report from 2013 on the general public’s attitudes to different types of personal data and data linking. The research looked at whether health data are viewed differently from other types of data, and what are the perceived risks and benefits, to self and society, of linking different kinds of data for research and other purposes.
Project Report: Wellcome Trust International Engagement workshop report: Trust Me I Am a Scientist (UK 2013)by Mesh editorial team
This report is based on conversations that took place at the Wellcome Trust’s fifth international engagement workshop ‘Trust Me I Am a Scientist’. The workshop took place in the UK in November 2013.
Red Cross's Jemilah Mahmood Offers 5 Principles for Improved Community Engagement During Humanitarian Actionby Mesh Editorial Team
Dr. Jemilah Mahmood, undersecretary general of the International Federation of Red Cross and Red Crescent Societies gave the keynote at the Medicine Sans Frontiere annual Scientific Day 2017. Her message was that humanitarian work needs to work far closer with local populations before, during and after humanitarian action. She emphasises five key principles to achieving this all of which would be relevant to those working in engagement with research in low income settings as well as humanitarian aid workers.
A toolkit of methods and guidance on collaborative decision making and community planning.
Guide: Performing Ethics: Using Participatory Theatre to Explore Ethical Issues in Community Based Participatory Researchby Mesh Editorial team
A code of ethics created by the San people of Africa for researchers wishing to study their culture.
Organisations that undertake research, engagement and policy work are dominated by white middle-class men. The basic question the book attempts to answer is: "what happens when these institutions attempt working with the rest of the world, which is different and diverse?”
Literature: Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme (Kilifi, Kenya)by Mesh Editorial Team
An article published in Social Science & Medicine summarising the rationale for community engagement in research. The article draws upon published literature and local findings to outline the process of community engagement in Kilifi, Kenya and to describe issues emerging from its development and early implementation. It also briefly reviews literature on Community Advisory Boards and a range of related ethical, methodological and contextual issues related to developing effective methods for community engagement.
Literature: Engaging diverse communities participating in clinical trials: case examples from across Africaby Mesh Editorial Team
This article focuses on community engagement activities employed at various AMANET-supported clinical trial sites in different countries, highlighting subtle differences in the approaches used. The paper also gives some general pros and cons of community engagement.