The Global Code of Conduct for Research in Resource-Poor Settings aims to stop the export of unethical research practices to low and middle income countries.
The International Network for Public Involvement and Engagement in Health and Social Care Research was launched in London on 27th November 2017. Our vision is for a world where patient and public involvement is an integral part of health research.
Literature: Planning for the social and economic impacts emerging from school-university engagement with researchby Mesh Editorial Team
In this article from the Journal of Science Communication (2015) the authors reflect on their work with teachers and students at a local school in Milton Keynes in the UK. They propose a flexible and adaptive metric to support all stakeholders with planning school engagement.
This paper from BMC Medical Ethics explores how researchers and research centres can activtly involve children and young people in health research activities and in the development of research proposals. They used group discussions with community members and schools students in rural Kenya to explore views on the topic.
Literature: Developing a finer grained analysis of research impact: Can we assess the wider effects of public engagement?by Marco Haenssgen
This article, published with a creative commons licence on the LSE Impact Blog, suggests a more comprehensive and balanced approach for the evaluation of public engagement, drawing on evaluation criteria commonly used in aid evaluation.
Literature: From ‘Trial Community’ to ‘Experimental Publics’: How Clinical Research Shapes Public Participationby C. Montgomery & R. Pool, Mesh Editorial Team
This report, commissioned by the Wellcome Trust in 2006, presents the results of qualitative research exploring public attitudes towards the governance of biomedical research.
The Wellcome Trust commissioned report from 2013 on the general public’s attitudes to different types of personal data and data linking. The research looked at whether health data are viewed differently from other types of data, and what are the perceived risks and benefits, to self and society, of linking different kinds of data for research and other purposes.
Published Literature: Introducing participatory visual methods to develop local knowledge on HIV in rural south africaby Mesh Editorial Team
This paper reports a study into the insights and perspectives of rural South African communities on HIV- related mortality. The aim of the study was to elicit local knowledge in order to identify priorities for service organisations to improve health.
A useful and comprehensive overview of how to undertake research and practice in arts in health. Contains practical advice for the management of a collaborative arts and health project (including how to manage a tender process, plan and evaluation and write a research protocol).
Photovoice Ethics is a report and ethical guide for researchers who want to explore sensitive topics with their audiences.
The Digital storytelling in research is a qualitative report published in February 2017. The paper includes a review of the history and value of digital story telling as an arts based research method for generating data about important issues.
Summary of academic paper critiquing experimental approaches to public engagement advocating instead an 'organic engagement' approach with 'ecological validation' which explores the context and mechanisms in which public's deliberations and opinions are formed. The paper is not open access however a comprehensive summary is given here.
Banks, S. et al (2014). Using co-inquiry to study co-inquiry: community-university perspectives on research collaboration. Journal of Community Engagement and Scholarship 7(1).
Organisations that undertake research, engagement and policy work are dominated by white middle-class men. The basic question the book attempts to answer is: "what happens when these institutions attempt working with the rest of the world, which is different and diverse?”