The International Network for Public Involvement and Engagement in Health and Social Care Research was launched in London on 27th November 2017. Our vision is for a world where patient and public involvement is an integral part of health research.
Literature: Planning for the social and economic impacts emerging from school-university engagement with researchby Mesh Editorial Team
In this article from the Journal of Science Communication (2015) the authors reflect on their work with teachers and students at a local school in Milton Keynes in the UK. They propose a flexible and adaptive metric to support all stakeholders with planning school engagement.
This paper from BMC Medical Ethics explores how researchers and research centres can activtly involve children and young people in health research activities and in the development of research proposals. They used group discussions with community members and schools students in rural Kenya to explore views on the topic.
Literature: Developing a finer grained analysis of research impact: Can we assess the wider effects of public engagement?by Marco Haenssgen
This article, published with a creative commons licence on the LSE Impact Blog, suggests a more comprehensive and balanced approach for the evaluation of public engagement, drawing on evaluation criteria commonly used in aid evaluation.
Literature: From ‘Trial Community’ to ‘Experimental Publics’: How Clinical Research Shapes Public Participationby C. Montgomery & R. Pool, Mesh Editorial Team
This report presents findings from an in-depth research study that aimed to:
- Situate the role governance plays in shaping attitudes to biomedical research
- Explore public responses to the principles and processes associated with different models of governance, and investigate the processes that function to reassure the public and which instil confidence in the way biomedical research is governed.
The Wellcome Trust commissioned CM Insight to conduct some focus groups to try to answer these questions, to help give us a better understanding of people's attitudes towards their data in order to inform future public engagement activities.The findings were launched at a Wellcome Collection event, 'Spotlight on…. Private Data, Public Good?'
A useful and comprehensive overview of how to undertake research and practice in arts in health. Contains practical advice for the management of a collaborative arts and health project (including how to manage a tender process, plan and evaluation and write a research protocol).
Photovoice Ethics is a report and ethical guide for researchers who want to explore sensitive topics with their audiences.
The Digital storytelling in research is a qualitative report published in February 2017. The paper includes a review of the history and value of digital story telling as an arts based research method for generating data about important issues.
Summary of academic paper critiquing experimental approaches to public engagement advocating instead an 'organic engagement' approach with 'ecological validation' which explores the context and mechanisms in which public's deliberations and opinions are formed. The paper is not open access however a comprehensive summary is given here.
Banks, S. et al (2014). Using co-inquiry to study co-inquiry: community-university perspectives on research collaboration. Journal of Community Engagement and Scholarship 7(1).
Organisations that undertake research, engagement and policy work are dominated by white middle-class men. The basic question the book attempts to answer is: "what happens when these institutions attempt working with the rest of the world, which is different and diverse?”