Welcome - Ethics of Engagement (Mesh-Literature)

Webinar: Taking relationships seriously: Findings from a realist review of community engagement

This webinar on the REAL Community Engagement Realist Review will share some fascinating findings which give more conceptual clarity around how community engagement works in practice. It highlights some key relationships and power dynamics at the heart of engagement work.

Policy Briefing: Responding to the COVID-19 pandemic: ethical considerations

This policy briefing from The Nuffield Council on Bioethics sets out the key ethical considerations relevant to public health measures being introduced to manage the COVID-19 pandemic in the UK.

Published Report: Research in global health emergencies

This Nuffield Council on Bioethics report from January 2020 contains the findings of a two year in-depth inquiry. The aim was to identify ways in which research can be undertaken ethically during emergencies, in order to promote the contribution that ethically-conducted research can make to improving current and future emergency preparedness and response.

Guide: Global Code of Conduct for Research in Resource-Poor Settings

The Global Code of Conduct for Research in Resource-Poor Settings aims to stop the export of unethical research practices to low and middle income countries.

Project Report: The Tak Province Border Community Ethics Advisory Board (T-CAB)

Academic Literature: Whose knowledge counts? Exploring cognitive justice in community-university collaborations.

Engaging with Social justice: An Interview with Ceri Davies, Research Director, National Centre for Social Research

Academic literature: Community engagement: Leadership tool for catastrophic health events

Academic Literature: Ethics of Randomized Trials in a Public Health Emergency

This paper briefly summarises the discussion of a committee which aimed to assess clinical trials conducted in Guinea, Sierra Leone and Liberia during the 2014-15 Ebola outbreak in West Africa.

Literature: Public Attitudes to Research Governance: A qualitative study in a deliberative context

This report, commissioned by the Wellcome Trust in 2006, presents the results of qualitative research exploring public attitudes towards the governance of biomedical research.

Published Literature: Public Attitudes to Personal Data and Linking Personal Data (2013)

The Wellcome Trust commissioned report from 2013 on the general public’s attitudes to different types of personal data and data linking. The research looked at whether health data are viewed differently from other types of data, and what are the perceived risks and benefits, to self and society, of linking different kinds of data for research and other purposes.

Published Literature: Politics of science communication in South Africa

This paper may be of interest to readers thinking about the local political and historical context and how this impacts on both science culture and the culture of science communication or public engagement within a country. This article focuses on South Africa although many of the considerations within it are likely to be pertinent in other countries which experienced colonialism. 

Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholders

 This qualitative study examined the perceptions, experiences and concerns of 32 research stakeholders about data-sharing practices.

Published Literature: Photovoice Ethics: Critical Reflections from Men’s Mental Health Research

Photovoice Ethics is a report and ethical guide for researchers who want to explore sensitive topics with their audiences.   

Workshop Report: ‘Community Engagement – Under the Microscope’ in Thailand in June 2011

A summary of a report exploring Community Engagement, what it means to global health researchers and its relationship to research ethics.