This webinar held in May 2022 on the REAL Community Engagement Realist Review shared some fascinating findings which give more conceptual clarity around how community engagement works in practice. It highlighted some key relationships and power dynamics at the heart of engagement work.
This policy briefing from The Nuffield Council on Bioethics sets out the key ethical considerations relevant to public health measures being introduced to manage the COVID-19 pandemic in the UK.
This Nuffield Council on Bioethics report from January 2020 contains the findings of a two year in-depth inquiry. The aim was to identify ways in which research can be undertaken ethically during emergencies, in order to promote the contribution that ethically-conducted research can make to improving current and future emergency preparedness and response.
The Global Code of Conduct for Research in Resource-Poor Settings aims to stop the export of unethical research practices to low and middle income countries.
Academic Literature: Whose knowledge counts? Exploring cognitive justice in community-university collaborations.by Siân Aggett, Mesh Editorial Team
Engaging with Social justice: An Interview with Ceri Davies, Research Director, National Centre for Social Researchby Siân Aggett, Mesh Editorial Team
This paper briefly summarises the discussion of a committee which aimed to assess clinical trials conducted in Guinea, Sierra Leone and Liberia during the 2014-15 Ebola outbreak in West Africa.
This report, commissioned by the Wellcome Trust in 2006, presents the results of qualitative research exploring public attitudes towards the governance of biomedical research.
The Wellcome Trust commissioned report from 2013 on the general public’s attitudes to different types of personal data and data linking. The research looked at whether health data are viewed differently from other types of data, and what are the perceived risks and benefits, to self and society, of linking different kinds of data for research and other purposes.
This paper may be of interest to readers thinking about the local political and historical context and how this impacts on both science culture and the culture of science communication or public engagement within a country. This article focuses on South Africa although many of the considerations within it are likely to be pertinent in other countries which experienced colonialism.
Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholdersby Spencer G Denny, Blessing Silaigwana, Douglas Wassenaar, Susan Bull, mparker
This qualitative study examined the perceptions, experiences and concerns of 32 research stakeholders about data-sharing practices.
Photovoice Ethics is a report and ethical guide for researchers who want to explore sensitive topics with their audiences.
A summary of a report exploring Community Engagement, what it means to global health researchers and its relationship to research ethics.