Guide: Ethical dimensions of community engagement and involvement in global health research
by Erica Nelson, Bridget Pratt, Dorcas Kamuya, Noni MumbaThis learning resource, from the UK's NIHR published in collaboration with the Institute of Development Studies, discusses the ethical dimensions to consider when engaging communities and involving patients in global health research. It was published in July 2021 reflecting on the COVID-19 pandemic.
Guide: Involving Communities - MSF Guidance document for approaching and cooperating with communities
by Médecins Sans Frontières, Mesh Editorial TeamThis guidance document is based on the joint work of the Vienna Evaluation Unit and MSF OCBA and discusses community-based approaches to medical anthropology and qualitative research
Project Report: Clinical and Genetic Studies of Hereditary Neurological Disorders in Mali
by Guida Landouré, Mesh Editorial TeamThis project used focus group discussions, individual interviews and community meetings to explore stigma around hereditary neurological diseases in Mali.
Project Report: The Genomics of Schizophrenia in South African Xhosa people (SAX) study
by Megan Campbell, Adele PretoriusThe Genomics of Schizophrenia in South African Xhosa People (SAX) study sought to identify genes or mutations underlying predisposition to schizophrenia in the South African Xhosa population. Engagement activities included a Community Advisory Board and a Mental Health Literacy Day.
Project Report: Understanding silenced and gendered health experiences and the impact on access
by Devi Leena Bose, Paromita Saha, Kashma Goyal, Joyeeta Mukherjee, Saif ul HadiThis reports on the The International AIDS Vaccine Initiative's community consultation workshop which aimed to contribute to a better understanding of gender contestations with regards to access to health and participation in biomedical research. They describe how they used body-maps, sharing circles and roadblock/hurdle mapping excercises to explore the topics of the workshop.
This article addresses community engagement around the COVID-19 outbreak in South Africa in April 2020 and proposes a free-to-use mobile app as well as a longer-term Community Engagement Nerve Centre for the country
Researchers funded by the NIHR Global Health Research Programme are expected to involve patients and the public in planning, implementation and evaluation of their research. This resource guide provides community engagement links, resources, references and learning to offer research teams and funding applicants a starting point
Literature: Who should decide about children’s and adolescents’ participation in health research?
by Mesh Editorial TeamThis paper from BMC Medical Ethics explores how researchers and research centres can activtly involve children and young people in health research activities and in the development of research proposals. They used group discussions with community members and schools students in rural Kenya to explore views on the topic.
Bangles and Bindhis: Engaging communities about child marriage in southern Nepal
by Mesh Editorial TeamA film engages Nepalese communities about the health implications of child marriage
Project Report: Z Factor: Using themed drama competitions to facilitate conversations on psychosis
by Denford GudyangaAn overview of a project in Zimbabwe engaging communities on mental health stigma and discrimination. It worked to help combat stigma and open up collaborative pathways between the traditional/faith based and medical models of mental health treatment
Project Report: The Tak Province Border Community Ethics Advisory Board (T-CAB)
by Natinee Kulpijit, Napat KhirikoekkongAcademic Literature: Development of a set of Community-informed Ebola Messages for Sierra Leone
by Kinsman, J., et al 2017, Mesh Editorial TeamThis paper summarises a project based in Sierra Leone during the 2014-15 Ebola outbreak that produced a set of culturally contextualised Ebola messages. The messages are based on findings from interviews and focus group discussions with community members from two Ebola ‘hot-spots’.
Project Report UPDATE: Science, Art, Community: Building Interactive Understanding of Albinism in Tanzania
by Standing Voice, Mesh Editorial TeamStanding Voice is an organisation that works to support people with albinism in Tanzania. This article explores how one of their projects, which communicates facts about albinism through interactive performances, navigates the cultural complexity surrounding albinism in Tanzania.
Article: Culturally relevant experiences in informal science education institutes
by Mesh Editorial teamRed Cross's Jemilah Mahmood Offers 5 Principles for Improved Community Engagement During Humanitarian Action
by Mesh Editorial TeamDr. Jemilah Mahmood, undersecretary general of the International Federation of Red Cross and Red Crescent Societies gave the keynote at the Medicine Sans Frontiere annual Scientific Day 2017. Her message was that humanitarian work needs to work far closer with local populations before, during and after humanitarian action. She emphasises five key principles to achieving this all of which would be relevant to those working in engagement with research in low income settings as well as humanitarian aid workers.