This study, which took place in the U.S, may be of interest to Mesh readers interested in the power of 'community voice' on decision-making in health policy and research.
A collection of easily accessible articles outlining community engagement with global health projects funded by the Wellcome Trust in 2010.
Project Report: Confluence of the Old and New: Understanding Resistance to New Born Screening in Nigeriaby Adebolajo Adeyemo
Literature: Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme (Kilifi, Kenya)by Mesh Editorial Team
An article published in Social Science & Medicine summarising the rationale for community engagement in research. The article draws upon published literature and local findings to outline the process of community engagement in Kilifi, Kenya and to describe issues emerging from its development and early implementation. It also briefly reviews literature on Community Advisory Boards and a range of related ethical, methodological and contextual issues related to developing effective methods for community engagement.
An introduction to the work of the Angkor Hospital for Children’s (AHC) Young Persons Advisory Group, a group of young Cambodians (aged 10 – 15 years) who meet monthly to discuss important operational and research issues arising from the AHC management.
These recommendations are intended as a tool to help research staff and community representatives expand and deepen existing partnerships, and forge new ones, with the ultimate goal of facilitating effective community engagement in all aspects of clinical trials research.