The International Network for Public Involvement and Engagement in Health and Social Care Research was launched in London on 27th November 2017. Our vision is for a world where patient and public involvement is an integral part of health research.
This paper from BMC Medical Ethics explores how researchers and research centres can activtly involve children and young people in health research activities and in the development of research proposals. They used group discussions with community members and schools students in rural Kenya to explore views on the topic.
Literature: Developing a finer grained analysis of research impact: Can we assess the wider effects of public engagement?by Marco Haenssgen
This article, published with a creative commons licence on the LSE Impact Blog, suggests a more comprehensive and balanced approach for the evaluation of public engagement, drawing on evaluation criteria commonly used in aid evaluation.
Examining the use of participatory visual and narrative methods to explore the lived experience of migrants in Southern Africaby mesh editorial team
This working paper explores the opportunities and challenges associated with visual research methodologies. The paper draws specifically on a MoVE (methods: visual: explore) project that explored the lived experiences of migrant groups in southern Africa.
Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholdersby Spencer G Denny, Blessing Silaigwana, Douglas Wassenaar, Susan Bull, Michael Parker
This qualitative study examined the perceptions, experiences and concerns of 32 research stakeholders about data-sharing practices.
Project Report: A puppet show to engage the community addressing antimicrobial resistance and research with childrenby Alice Hawryszkiewycz, Phaik Yeong Cheah
Fishy Clouds, a puppet theatre show, was created to engage the community on issues of antimicrobial resistance and research with children in Thailand. Fishy Clouds ran for twelve shows during the months of November and December 2016 in schools, hospitals, theatres and health centres. The show was performed in Bangkok and in the greater Mae Sot area in the Tak district of Thailand.