This paper from BMC Medical Ethics explores how researchers and research centres can activtly involve children and young people in health research activities and in the development of research proposals. They used group discussions with community members and schools students in rural Kenya to explore views on the topic.
The KEMRI Wellcome Trust Research Programme's School Engagement Programme (SEP) aims at promoting an interest in science and science related careers amoung students as well as promoting mutual understanding between members of the community and researchers.
Project Report UPDATE: Science, Art, Community: Building Interactive Understanding of Albinism in Tanzaniaby Standing Voice, Mesh Editorial Team
Standing Voice is an organisation that works to support people with albinism in Tanzania. This article explores how one of their projects, which communicates facts about albinism through interactive performances, navigates the cultural complexity surrounding albinism in Tanzania.
The Polio Communication Network Contribution to the Polio Outbreak Response in Ethiopia's Somali Region, 2013-2015by Mesh Editorial Team
This article explores the Polio Communication Network's contribution to the polio outbreak response in the Somali Region of Ethiopia from 2013 to 2015. The article explores the barriers that prevented communities in seeking immunizations and they include weak health worker interpersonal communication during immunization sessions, in accessible immunization site, fear of vaccine side effects and reactions and inconvenient timing of sessions.
This case study is about a proposed programme of work on evaluation of the various engagement activities (public and community) that are undertaken at the KEMRI-Wellcome Trust Research Programme (KWTRP). The case study was based on a presentation delivered at the Mesh Evaluating Community Engagement Workshop 2017.
A participant of the Mesh evaluating engagement workshop (March 2017) gives there reflection on the workshop and the key learning that came from it.
Project Report/Blog: Evaluating public/community engagement: Implications for gender and ethics in health systems researchby Sassy Molyneux
A participant of the Mesh evaluating engagement workshop (March 2017) reflects on the learning from the workshop, focusing on points useful for health policy and systems researchers with an interest in gender and ethics.
Samala Moyo is an interactive exhibition with an outreach component designed to open the Malawi–Liverpool– Wellcome Trust Clinical Research Programme (MLW) to the local community and creatively explore crucial topics in medical research. The project was developed from a small International Engagement Award-funded pilot project and subsequently received £188,000.
Literature: Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme (Kilifi, Kenya)by Mesh Editorial Team
An article published in Social Science & Medicine summarising the rationale for community engagement in research. The article draws upon published literature and local findings to outline the process of community engagement in Kilifi, Kenya and to describe issues emerging from its development and early implementation. It also briefly reviews literature on Community Advisory Boards and a range of related ethical, methodological and contextual issues related to developing effective methods for community engagement.
An online Research Communication Guide produced as part of a series of Development Research Uptake in Sub-Saharan Africa (DRUSSA) learning materials.
Literature: The Cooking and Pneumonia Study (CAPS) in Malawi: A Nested Pilot of Photovoice Participatory Research Methodologyby Jane Ardrey, Nicola Desmond, Rachel Tolhurst, Kevin Mortimer
In January 2015, the use of Photovoice as a participatory research methodology was piloted at the Cooking and Pneumonia Study Chikhwawa site in Malawi. Photovoice is a photographic technique that allows communities (including women and marginalised groups) to share knowledge about their perspectives and priorities.
Literature: Trust and Health Research in Developing Countries: Summary of the issues (Wellcome Trust, 2013)by Wellcome Trust
This literature review was written by Dorcus Kamuya for the Wellcome Trust's fifth international engagement workshop. It focuses on trust in the context of health research in developing countries and highlights a range of challenges affecting levels of trust.