Welcome - Participatory Research (mesh literature)

School students take a Virtual Reality tour of KEMRI Wellcome Trust Research Laboratories

Guides & Tools: LBG Research Priority Setting Project Database

An available database developed by the LBG Open Innovation in Science Center for you to explore research priority setting projects worldwide and a research tool for unanswered research questions and under-researched topics.

Published Literature: Involving young people in health research

This study published by Wellcome in 2021 explores the role, benefits and potential of young people’s involvement in health research, with a focus on mental health, infectious diseases and global heating. It provides recommendations on how to meaningfully involve young people in research, and what it means to do that well.

Published Report: Supporting Strong Engagement Practice in Clinical Trials

This report from Hilo Consultants Ltd outlines the key themes arising from a workshop session held in October 2020 which sought to look at ways of supporting strong practice in engagement within clinical trials.

News: International Network on Patient and Public Involvement (PPI)

The International Network for Public Involvement and Engagement in Health and Social Care Research was launched in London on 27th November 2017. Our vision is for a world where patient and public involvement is an integral part of health research.

Literature: Planning for the social and economic impacts emerging from school-university engagement with research

In this article from the Journal of Science Communication (2015) the authors reflect on their work with teachers and students at a local school in Milton Keynes in the UK. They propose a flexible and adaptive metric to support all stakeholders with planning school engagement.

Literature: Who should decide about children’s and adolescents’ participation in health research?

This paper from BMC Medical Ethics explores how researchers and research centres can activtly involve children and young people in health research activities and in the development of research proposals. They used group discussions with community members and schools students in rural Kenya to explore views on the topic.

News: Community Engagement for Antimicrobial Resistance (CE4AMR) network

CE4AMR network is a global gathering of researchers and practitioners who use, or are interested in using, community engagement – in particular participatory and creative approaches – to tackle Antimicrobial Resistance (AMR) in low- and middle-income countries (LMICs)

Literature: From ‘Trial Community’ to ‘Experimental Publics’: How Clinical Research Shapes Public Participation

This article argues for a conceptual shift away from the static, singular term ‘trial community’ towards ‘experimental publics’. The authors observe that the term ‘community’ is often employed uncritically and assumes that ‘communities’ pre-exist research; that they are timeless and undifferentiated wholes. ‘Experimental publics’, by contrast, are dynamic, multiple, and impermanent in nature.

Literature: Between Vision and Reality: A Study of Scientists’ Views on Citizen Science

This paper describes a case study, which planned to involve citizen science in an air pollution study. Findings are based on interviews and observations, including a six-month field diary, of ten scientists who engaged in a citizen science project not because they are convinced of its value as an approach to strong science but in order to receive funding for their scientific research. 

Unpacking ‘Participation’: models, meanings and practices

Published Literature: Introducing participatory visual methods to develop local knowledge on HIV in rural south africa

This paper reports a study into the insights and perspectives of rural South African communities on HIV- related mortality. The aim of the study was to elicit local knowledge in order to identify priorities for service organisations to improve health.

Published Literature: Photovoice Ethics: Critical Reflections from Men’s Mental Health Research

Photovoice Ethics is a report and ethical guide for researchers who want to explore sensitive topics with their audiences.   

Digital Storytelling in Research: A Systematic Review

The Digital storytelling in research is a qualitative report published in February 2017. The paper includes a review of the history and value of digital story telling as an arts based research method for generating data about important issues.

Health Exchange: Engaging the public in health research

A collection of easily accessible articles outlining community engagement with global health projects funded by the Wellcome Trust in 2010. 

Using Co-Inquiry to Study Co-Inquiry: Community-University Perspectives on Research

Banks, S. et al (2014). Using co-inquiry to study co-inquiry: community-university perspectives on research collaboration. Journal of Community Engagement and Scholarship 7(1).

Literature: People’s Knowledge and Participatory Action Research Book

Organisations that undertake research, engagement and policy work are dominated by white middle-class men. The basic question the book attempts to answer is: "what happens when these institutions attempt working with the rest of the world, which is different and diverse?”