LITERATURE: Engaging 'Communities': Anthropological Insights from the West African Ebola Epidemic

by A. Wilkinson, M. Parker, F. Martineau, and M. Leach, Mesh Editorial Team

This article, by Wilkinson et al. 2017, deconstructs notions of 'community', and the ways it is conceptualised and understood, in order to critically reflect upon methods of engaging 'communities' during the west African Ebola epidemic in 2014. 

15th May 2018 • comment

This article summarises the findings of three separate research papers by Adhikari et al., which explore the role of community engagement for participation in mass antimalarial administration during a Targeted Malaria Elimination (TME) projects in Lao PDR (Laos).

30th April 2018 • comment

This article draws on experience of designing and implementing community engagement in Laos for Targeted Malaria Elimination (TME). It identifies five key elements of effective community engagement for mass antimalarial administration in this setting.

30th April 2018 • comment

This report is a synthesis of discussions held at the Wellcome Trust International Engagement Workshop: 'Telling Stories'. Points raised touched upon the practical and theoretical challenges involved in translating science to diverse audiences, using creative methodologies in public engagement, and working with diverse and vulnerable groups. This report is a synthesis of the discussions, key points and key questions raised at the workshop.

27th March 2018 • comment

The Wellcome Trust’s Science Education Tracker is a survey of young people’s attitudes toward, and experiences of, science education and careers in England. The findings of this survey informed multiple reports, including this one looking at young people’s views on science education.

26th March 2018 • comment

This report presents findings from an in-depth research study that aimed to:

  • Situate the role governance plays in shaping attitudes to biomedical research
  • Explore public responses to the principles and processes associated with different models of governance, and investigate the processes that function to reassure the public and which instil confidence in the way biomedical research is governed.

26th March 2018 • comment

This research report from the World Federation of Science Journalists explores the lived experience of African journalists during the 2014 Ebola crisis in West Africa with the aim of highlighting key professional, technological and social aspects required for effective journalism during emergency and post-outbreak periods.

23rd March 2018 • comment

This paper describes a case study, which planned to involve citizen science in an air pollution study. Findings are based on interviews and observations, including a six-month field diary, of ten scientists who engaged in a citizen science project not because they are convinced of its value as an approach to strong science but in order to receive funding for their scientific research. 

22nd March 2018 • comment

The Wellcome Trust commissioned CM Insight to conduct some focus groups to try to answer these questions, to help give us a better understanding of people's attitudes towards their data in order to inform future public engagement activities.The findings were launched at a Wellcome Collection event, 'Spotlight on…. Private Data, Public Good?'  

19th February 2018 • comment

This paper may be of interest to readers thinking about the local political and historical context and how this impacts on both science culture and the culture of science communication or public engagement within a country. This article focuses on South Africa although many of the considerations within it are likely to be pertinent in other countries which experienced colonialism. 

15th February 2018 • comment
15th February 2018 • comment

This article explores the Polio Communication Network's contribution to the polio outbreak response in the Somali Region of Ethiopia from 2013 to 2015. The article explores the barriers that prevented communities in seeking immunizations and they include weak health worker interpersonal communication during immunization sessions, in accessible immunization site, fear of vaccine side effects and reactions and inconvenient timing of sessions.

12th February 2018 • comment

 This qualitative study examined the perceptions, experiences and concerns of 32 research stakeholders about data-sharing practices.

7th February 2018 • comment

The article defines community engagement as a method to improve communities identifying and addressing local ideas, concerns and opportunities. Other definitions are included to demonstrate the variety of perspectives of community engagement by both academics and practitioners in the field. The article also provides a brief description of community engagement in practice and demonstrates two relevant case studies in Sub-Saharan Africa which has led to the creation of two separate community engagement models.

29th January 2018 • comment

This paper reports a study into the insights and perspectives of rural South African communities on HIV- related mortality. The aim of the study was to elicit local knowledge in order to identify priorities for service organisations to improve health.

22nd January 2018 • comment

A collaboration across Latin America and the Caribbean has led to publication of the first guide on accessibility for science centres within the region. 

8th January 2018 • comment

Dr. Jemilah Mahmood, undersecretary general of the International Federation of Red Cross and Red Crescent Societies gave the keynote at the Medicine Sans Frontiere annual Scientific Day 2017.  Her message was that humanitarian work needs to work far closer with local populations before, during and after humanitarian action. She emphasises five key principles to achieving this all of which would be relevant to those working in engagement with research in low income settings as well as humanitarian aid workers.

22nd October 2017 • comment

A collection of easily accessible articles outlining community engagement with global health projects funded by the Wellcome Trust in 2010. 

29th September 2017 • comment

Review of 2017 publication containing 47 essays on science communication through broadcast, social media and scientific publication channels.

29th September 2017 • comment

Banks, S. et al (2014). Using co-inquiry to study co-inquiry: community-university perspectives on research collaboration. Journal of Community Engagement and Scholarship 7(1).

2nd March 2017 • comment

Organisations that undertake research, engagement and policy work are dominated by white middle-class men. The basic question the book attempts to answer is: "what happens when these institutions attempt working with the rest of the world, which is different and diverse?”

21st February 2017 • comment

An article published in Social Science & Medicine summarising the rationale for community engagement in research. The article draws upon published literature and local findings to outline the process of community engagement in Kilifi, Kenya and to describe issues emerging from its development and early implementation. It also briefly reviews literature on Community Advisory Boards and a range of related ethical, methodological and contextual issues related to developing effective methods for community engagement.

13th September 2016 • comment

an extensive introduction to the growing and changing role of social media in communication with an emphasis on developing country experience.

25th July 2016 • comment

This case study acts as an example of using participatory system inquiry and systemic action research to evaluate complex projects.

15th July 2016 • comment

Short paper exploring systemic action research and participatory system inquiry as approaches to assessing impact in social programmes and initiatives.

15th July 2016 • comment

Literature: Who Counts? The power of participatory statistics

by Jeremy Holland, 2013 Practical Action Publishing, Rugby, UK

An introduction to the book Who Counts? The power of participatory statistics and some of the case studies within it.

1st July 2016 • comment

In January 2015, the use of Photovoice as a participatory research methodology was piloted at the Cooking and Pneumonia Study Chikhwawa site in Malawi. Photovoice is a photographic technique that allows communities (including women and marginalised groups) to share knowledge about their perspectives and priorities.

30th June 2016 • comment

Lecture by theatre maker and artist Lucy Neal, author of Playing for Time (available from Oberon Books Ltd.). The handbook, written with over 60 artists, identifies collaborative arts practices in a range of community contexts and provides a useful breakdown of principles and practice for adaptation. 

11th April 2016 • comment

Evaluation report from the Wellcome Trust's Sciart funding programme

6th April 2016 • comment

This article focuses on community engagement activities employed at various AMANET-supported clinical trial sites in different countries, highlighting subtle differences in the approaches used. The paper also gives some general pros and cons of community engagement.

11th January 2016 • comment

This literature review was written by Dorcus Kamuya for the Wellcome Trust's fifth international engagement workshop. It focuses on trust in the context of health research in developing countries and highlights a range of challenges affecting levels of trust.

11th January 2016 • comment