This article, by Wilkinson et al. 2017, deconstructs notions of 'community', and the ways it is conceptualised and understood, in order to critically reflect upon methods of engaging 'communities' during the west African Ebola epidemic in 2014.
Literature: The role of community engagement for participation in mass antimalarial administration. Findings from Targeted Malaria Elimination studies in Lao PDR (Laos).by Adhikari et al. , Mesh Editorial Team
This article summarises the findings of three separate research papers by Adhikari et al., which explore the role of community engagement for participation in mass antimalarial administration during a Targeted Malaria Elimination (TME) projects in Lao PDR (Laos).
Literature: Elements of effective community engagement: lessons from a targeted malaria elimination study in Lao PDR (Laos)by Adhikari et al. , Mesh Editorial Team
This article draws on experience of designing and implementing community engagement in Laos for Targeted Malaria Elimination (TME). It identifies five key elements of effective community engagement for mass antimalarial administration in this setting.
Wellcome Trust International Engagement workshop report: Telling Stories: How the public can engage with science (India 2009)by Mesh Editorial team
This report is a synthesis of discussions held at the Wellcome Trust International Engagement Workshop: 'Telling Stories'. Points raised touched upon the practical and theoretical challenges involved in translating science to diverse audiences, using creative methodologies in public engagement, and working with diverse and vulnerable groups. This report is a synthesis of the discussions, key points and key questions raised at the workshop.
The Wellcome Trust’s Science Education Tracker is a survey of young people’s attitudes toward, and experiences of, science education and careers in England. The findings of this survey informed multiple reports, including this one looking at young people’s views on science education.
This report presents findings from an in-depth research study that aimed to:
- Situate the role governance plays in shaping attitudes to biomedical research
- Explore public responses to the principles and processes associated with different models of governance, and investigate the processes that function to reassure the public and which instil confidence in the way biomedical research is governed.
Literature: Research Report - An Exploration of the Lived Experience of African Journalists During the 2014 Ebola Crisisby Mesh Editorial Team
This research report from the World Federation of Science Journalists explores the lived experience of African journalists during the 2014 Ebola crisis in West Africa with the aim of highlighting key professional, technological and social aspects required for effective journalism during emergency and post-outbreak periods.
This paper describes a case study, which planned to involve citizen science in an air pollution study. Findings are based on interviews and observations, including a six-month field diary, of ten scientists who engaged in a citizen science project not because they are convinced of its value as an approach to strong science but in order to receive funding for their scientific research.
The Wellcome Trust commissioned CM Insight to conduct some focus groups to try to answer these questions, to help give us a better understanding of people's attitudes towards their data in order to inform future public engagement activities.The findings were launched at a Wellcome Collection event, 'Spotlight on…. Private Data, Public Good?'
This paper may be of interest to readers thinking about the local political and historical context and how this impacts on both science culture and the culture of science communication or public engagement within a country. This article focuses on South Africa although many of the considerations within it are likely to be pertinent in other countries which experienced colonialism.
The Polio Communication Network Contribution to the Polio Outbreak Response in Ethiopia's Somali Region, 2013-2015by Mesh Editorial Team
This article explores the Polio Communication Network's contribution to the polio outbreak response in the Somali Region of Ethiopia from 2013 to 2015. The article explores the barriers that prevented communities in seeking immunizations and they include weak health worker interpersonal communication during immunization sessions, in accessible immunization site, fear of vaccine side effects and reactions and inconvenient timing of sessions.
Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholdersby Spencer G Denny, Blessing Silaigwana, Douglas Wassenaar, Susan Bull, Michael Parker
This qualitative study examined the perceptions, experiences and concerns of 32 research stakeholders about data-sharing practices.
The article defines community engagement as a method to improve communities identifying and addressing local ideas, concerns and opportunities. Other definitions are included to demonstrate the variety of perspectives of community engagement by both academics and practitioners in the field. The article also provides a brief description of community engagement in practice and demonstrates two relevant case studies in Sub-Saharan Africa which has led to the creation of two separate community engagement models.
This paper reports a study into the insights and perspectives of rural South African communities on HIV- related mortality. The aim of the study was to elicit local knowledge in order to identify priorities for service organisations to improve health.
A collaboration across Latin America and the Caribbean has led to publication of the first guide on accessibility for science centres within the region.
Red Cross's Jemilah Mahmood Offers 5 Principles for Improved Community Engagement During Humanitarian Actionby Mesh Editorial Team
Dr. Jemilah Mahmood, undersecretary general of the International Federation of Red Cross and Red Crescent Societies gave the keynote at the Medicine Sans Frontiere annual Scientific Day 2017. Her message was that humanitarian work needs to work far closer with local populations before, during and after humanitarian action. She emphasises five key principles to achieving this all of which would be relevant to those working in engagement with research in low income settings as well as humanitarian aid workers.
A collection of easily accessible articles outlining community engagement with global health projects funded by the Wellcome Trust in 2010.
Review of 2017 publication containing 47 essays on science communication through broadcast, social media and scientific publication channels.
Banks, S. et al (2014). Using co-inquiry to study co-inquiry: community-university perspectives on research collaboration. Journal of Community Engagement and Scholarship 7(1).
Organisations that undertake research, engagement and policy work are dominated by white middle-class men. The basic question the book attempts to answer is: "what happens when these institutions attempt working with the rest of the world, which is different and diverse?”
Literature: Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme (Kilifi, Kenya)by Mesh Editorial Team
An article published in Social Science & Medicine summarising the rationale for community engagement in research. The article draws upon published literature and local findings to outline the process of community engagement in Kilifi, Kenya and to describe issues emerging from its development and early implementation. It also briefly reviews literature on Community Advisory Boards and a range of related ethical, methodological and contextual issues related to developing effective methods for community engagement.
Literature: Future Connect: a review of social networking today, tomorrow and beyond, and the challenge or HIV Communicatorsby Pete Cranston and Tim Davies et al.
an extensive introduction to the growing and changing role of social media in communication with an emphasis on developing country experience.
This case study acts as an example of using participatory system inquiry and systemic action research to evaluate complex projects.
Literature: Assessing Impact in Dynamic and Complex Environments: Systemic Action Research and Participatory System Inquiry (2014)by Danny Burns
Short paper exploring systemic action research and participatory system inquiry as approaches to assessing impact in social programmes and initiatives.
An introduction to the book Who Counts? The power of participatory statistics and some of the case studies within it.
Literature: The Cooking and Pneumonia Study (CAPS) in Malawi: A Nested Pilot of Photovoice Participatory Research Methodologyby Jane Ardrey, Nicola Desmond, Rachel Tolhurst, Kevin Mortimer
In January 2015, the use of Photovoice as a participatory research methodology was piloted at the Cooking and Pneumonia Study Chikhwawa site in Malawi. Photovoice is a photographic technique that allows communities (including women and marginalised groups) to share knowledge about their perspectives and priorities.
Lecture by theatre maker and artist Lucy Neal, author of Playing for Time (available from Oberon Books Ltd.). The handbook, written with over 60 artists, identifies collaborative arts practices in a range of community contexts and provides a useful breakdown of principles and practice for adaptation.
Evaluation report from the Wellcome Trust's Sciart funding programme
Literature: Engaging diverse communities participating in clinical trials: case examples from across Africaby Mesh Editorial Team
This article focuses on community engagement activities employed at various AMANET-supported clinical trial sites in different countries, highlighting subtle differences in the approaches used. The paper also gives some general pros and cons of community engagement.
Literature: Trust and Health Research in Developing Countries: Summary of the issues (Wellcome Trust, 2013)by Wellcome Trust
This literature review was written by Dorcus Kamuya for the Wellcome Trust's fifth international engagement workshop. It focuses on trust in the context of health research in developing countries and highlights a range of challenges affecting levels of trust.