This report from the Wellcome Trust DBT India Alliance, published in May 2021, describes the results from an online survey carried out in 2020 looking at understanding of, participation in and attitudes towards engagement in their grantees
This policy briefing from The Nuffield Council on Bioethics sets out the key ethical considerations relevant to public health measures being introduced to manage the COVID-19 pandemic in the UK.
Literature: Trust and Health Research in Developing Countries: Summary of the issues (Wellcome Trust, 2013)by Wellcome Trust
This literature review was written by Dorcus Kamuya for the Wellcome Trust's fifth international engagement workshop. It focuses on trust in the context of health research in developing countries and highlights a range of challenges affecting levels of trust.
Published Literature: Rumours, Riots and the rejection of mass drug administration for the treatment of schistosomiasis in Morogoro, Tanzaniaby Julie Hastings, Mesh Editorial Team
This article from 2016 in the Journal of Biosocial Science outlines the case of a mass drug administration programme in Tanzania which had to be suspened after community riots
Published Literature: How can community engagement in health research be strengthened for infectious disease outbreaks in Sub-Saharan Africa? A scoping review of the literatureby Mesh Editorial Team
This literature review, published in 2021 and funded by ALERRT, looks at the body of knowledge that has been developed for community engagement specifically as it applies to emerging infectious disease outbreaks in Sub-Saharan Africa.
This Nuffield Council on Bioethics report from January 2020 contains the findings of a two year in-depth inquiry. The aim was to identify ways in which research can be undertaken ethically during emergencies, in order to promote the contribution that ethically-conducted research can make to improving current and future emergency preparedness and response.
This paper describes an International Public Health Film Competition held in 2020 during the COVID-19 pandemic and shares learning from the process for future film festivals
This in-depth empirical analysis of the research field in science communication published in 2020 looks both at strengths and weaknesses of research in the field, and a reflects on its future needs and perspectives.
This report from Hilo Consultants Ltd outlines the key themes arising from a workshop session held in October 2020 which sought to look at ways of supporting strong practice in engagement within clinical trials.
This article addresses community engagement around the COVID-19 outbreak in South Africa in April 2020 and proposes a free-to-use mobile app as well as a longer-term Community Engagement Nerve Centre for the country
Literature: Planning for the social and economic impacts emerging from school-university engagement with researchby Mesh Editorial Team
In this article from the Journal of Science Communication (2015) the authors reflect on their work with teachers and students at a local school in Milton Keynes in the UK. They propose a flexible and adaptive metric to support all stakeholders with planning school engagement.
This article, by Wilkinson et al. 2017, deconstructs notions of 'community', and the ways it is conceptualised and understood, in order to critically reflect upon methods of engaging 'communities' during the west African Ebola epidemic in 2014.
Literature: The role of community engagement for participation in mass antimalarial administration. Findings from Targeted Malaria Elimination studies in Lao PDR (Laos).by Adhikari et al. , Mesh Editorial Team
This article summarises the findings of three separate research papers by Adhikari et al., which explore the role of community engagement for participation in mass antimalarial administration during a Targeted Malaria Elimination (TME) projects in Lao PDR (Laos).
Literature: Elements of effective community engagement: lessons from a targeted malaria elimination study in Lao PDR (Laos)by Adhikari et al. , Mesh Editorial Team
This article draws on experience of designing and implementing community engagement in Laos for Targeted Malaria Elimination (TME). It identifies five key elements of effective community engagement for mass antimalarial administration in this setting.
Wellcome Trust International Engagement workshop report: Telling Stories: How the public can engage with science (India 2009)by Mesh Editorial team
This report is a synthesis of discussions held at the Wellcome Trust International Engagement Workshop: 'Telling Stories'. Points raised touched upon the practical and theoretical challenges involved in translating science to diverse audiences, using creative methodologies in public engagement, and working with diverse and vulnerable groups. This report is a synthesis of the discussions, key points and key questions raised at the workshop.
The Wellcome Trust’s Science Education Tracker is a survey of young people’s attitudes toward, and experiences of, science education and careers in England. The findings of this survey informed multiple reports, including this one looking at young people’s views on science education.
This report, commissioned by the Wellcome Trust in 2006, presents the results of qualitative research exploring public attitudes towards the governance of biomedical research.
Literature: Research Report - An Exploration of the Lived Experience of African Journalists During the 2014 Ebola Crisisby Mesh Editorial Team
This research report from the World Federation of Science Journalists explores the lived experience of African journalists during the 2014 Ebola crisis in West Africa with the aim of highlighting key professional, technological and social aspects required for effective journalism during emergency and post-outbreak periods.
This paper describes a case study, which planned to involve citizen science in an air pollution study. Findings are based on interviews and observations, including a six-month field diary, of ten scientists who engaged in a citizen science project not because they are convinced of its value as an approach to strong science but in order to receive funding for their scientific research.
The Wellcome Trust commissioned report from 2013 on the general public’s attitudes to different types of personal data and data linking. The research looked at whether health data are viewed differently from other types of data, and what are the perceived risks and benefits, to self and society, of linking different kinds of data for research and other purposes.
This paper may be of interest to readers thinking about the local political and historical context and how this impacts on both science culture and the culture of science communication or public engagement within a country. This article focuses on South Africa although many of the considerations within it are likely to be pertinent in other countries which experienced colonialism.
Published Literature: The Polio Communication Network Contribution to the Polio Outbreak Response in Ethiopia's Somali Region, 2013-2015by Mesh Editorial Team
This article explores the Polio Communication Network's contribution to the polio outbreak response in the Somali Region of Ethiopia from 2013 to 2015. The article explores the barriers that prevented communities in seeking immunizations and they include weak health worker interpersonal communication during immunization sessions, in accessible immunization site, fear of vaccine side effects and reactions and inconvenient timing of sessions.
Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholdersby Spencer G Denny, Blessing Silaigwana, Douglas Wassenaar, Susan Bull, mparker
This qualitative study examined the perceptions, experiences and concerns of 32 research stakeholders about data-sharing practices.
Published Literature: Introducing participatory visual methods to develop local knowledge on HIV in rural south africaby Mesh Editorial Team
This paper reports a study into the insights and perspectives of rural South African communities on HIV- related mortality. The aim of the study was to elicit local knowledge in order to identify priorities for service organisations to improve health.
Red Cross's Jemilah Mahmood Offers 5 Principles for Improved Community Engagement During Humanitarian Actionby Mesh Editorial Team
Dr. Jemilah Mahmood, undersecretary general of the International Federation of Red Cross and Red Crescent Societies gave the keynote at the Medicine Sans Frontiere annual Scientific Day 2017. Her message was that humanitarian work needs to work far closer with local populations before, during and after humanitarian action. She emphasises five key principles to achieving this all of which would be relevant to those working in engagement with research in low income settings as well as humanitarian aid workers.
A collection of easily accessible articles outlining community engagement with global health projects funded by the Wellcome Trust in 2010.
Review of 2017 publication containing 47 essays on science communication through broadcast, social media and scientific publication channels.
This article analyses media coverage and public communications over the time of the Ebola outbreak in West Africa 2013-2016 with a focus on the interations between scientifically grounded information and messages from cultural and religious actors.
Banks, S. et al (2014). Using co-inquiry to study co-inquiry: community-university perspectives on research collaboration. Journal of Community Engagement and Scholarship 7(1).
Organisations that undertake research, engagement and policy work are dominated by white middle-class men. The basic question the book attempts to answer is: "what happens when these institutions attempt working with the rest of the world, which is different and diverse?”
Literature: Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme (Kilifi, Kenya)by Mesh Editorial Team
An article published in Social Science & Medicine summarising the rationale for community engagement in research. The article draws upon published literature and local findings to outline the process of community engagement in Kilifi, Kenya and to describe issues emerging from its development and early implementation. It also briefly reviews literature on Community Advisory Boards and a range of related ethical, methodological and contextual issues related to developing effective methods for community engagement.
Published Literature: Future Connect: a review of social networking today, tomorrow and beyond, and the challenge or HIV Communicatorsby Pete Cranston and Tim Davies et al.
An extensive introduction to the growing and changing role of social media in communication with an emphasis on developing country experience.
This case study acts as an example of using participatory system inquiry and systemic action research to evaluate complex projects.
Literature: Assessing Impact in Dynamic and Complex Environments: Systemic Action Research and Participatory System Inquiry (2014)by Danny Burns
Short paper exploring systemic action research and participatory system inquiry as approaches to assessing impact in social programmes and initiatives.
An introduction to the book Who Counts? The power of participatory statistics and some of the case studies within it.
Lecture by theatre maker and artist Lucy Neal, author of Playing for Time (available from Oberon Books Ltd.). The handbook, written with over 60 artists, identifies collaborative arts practices in a range of community contexts and provides a useful breakdown of principles and practice for adaptation.
Evaluation report from the Wellcome Trust's Sciart funding programme
Literature: Engaging diverse communities participating in clinical trials: case examples from across Africaby Mesh Editorial Team
This article focuses on community engagement activities employed at various AMANET-supported clinical trial sites in different countries, highlighting subtle differences in the approaches used. The paper also gives some general pros and cons of community engagement.