This toolbox was developed in 2020 for the World Health Organisation COVID-19 Research Roadmap and provides a synthesis of key action points from the WHO GPP-EP guidelines. This “how to” guide gives an overview, tips and resources and will be updated as new resources are completed and approved.
This policy briefing from The Nuffield Council on Bioethics sets out the key ethical considerations relevant to public health measures being introduced to manage the COVID-19 pandemic in the UK.
GPP-EP were prepared in 2016 by the WHO to support prevention and treatment trials of emerging (and re-emerging) pathogens that were likely to cause severe outbreaks. The guidelines address how to engage community stakeholders and promote ethical standards throughout the research process.
This toolbox was developed for the World Health Organisation COVID-19 Research Roadmap and shares information on establishing and working with different types of Community Advisory Boards/Groups (CAB/Gs) in the context of COVID-19 clinical studies.
WHO's COVID-19 Global Risk Communication and Community Engagement Strategy, December 2020 - May 2021 is underpinned by a socio-behavioural trends analysis and builds on the learnings from the response to-date. The shift presented in the document is towards the community engagement and participatory approaches that have been proven to help control and eliminate outbreaks in the past.
Published Literature: How can community engagement in health research be strengthened for infectious disease outbreaks in Sub-Saharan Africa? A scoping review of the literatureby Mesh Editorial Team
This literature review, published in 2021 and funded by ALERRT, looks at the body of knowledge that has been developed for community engagement specifically as it applies to emerging infectious disease outbreaks in Sub-Saharan Africa.
SSHAP (the Social Science in Humanitarian Action Platform) is a programme of work focusing on the social dimensions of emergency responses. Their site has an excellent resource page with COVID-19 as a search topic
This Nuffield Council on Bioethics report from January 2020 contains the findings of a two year in-depth inquiry. The aim was to identify ways in which research can be undertaken ethically during emergencies, in order to promote the contribution that ethically-conducted research can make to improving current and future emergency preparedness and response.
Although these Good Participatory Practice (GPP) Guidelines were developed by AVAC and UNAIDS for HIV prevention trials, they are valuable to clinical trials across fields, research areas, geographies and populations.
This series of pre-recorded panel discussions form part of EBODAC's virtual event exploring acceptance and uptake of new Ebola vaccines. They include sessions on 'Trust & Community Engagement' as well as 'Rumour Management'.
This seminar, held in October 2020, explores vaccines hesitancy and what effect it will have on the development and roll-out of a potential COVID-19 vaccine. Chaired by Katherine Littler, Co-Lead, Global Health Ethics & Governance Unit at WHO.
“Right to Food Project” was implemented by the African Population and Health Research Center from 2018 to 2019 in urban Kenya. Different participatory visual methodologies were used to engage with the community members on the right to food. These included graffiti and wall murals, digital stories, photovoice, radio shows, human libraries, participatory educative theaters, open air events and community dialogue.
This article addresses community engagement around the COVID-19 outbreak in South Africa in April 2020 and proposes a free-to-use mobile app as well as a longer-term Community Engagement Nerve Centre for the country
Superheroes again Superbugs is a public engagement programme that aims to raise awareness on antimicrobial resistance and promote community action by engaging with students in India
Project Report: “Nothing about us without us”: How families affected by Zika are claiming back controlby Mesh Editorial Team, Natalie Hunter
This article introduces a series of videos exploring experiences of the Zika epidemic from different perspectives. Within the videos we hear from mothers of children born with microcephaly and from researchers in Brazil and the UK.
Podcast: Defined roles and Working Together: A Conversation about the Community Engagement, Communications and Social Science associated with a Vaccine Trial during the Ebola Outbreak of 2014-2016.by Sian Aggett, Mesh Editorial Team
This podcast features the team who led the EBOVAC-Salone study at London School of Hygiene and Tropical Medicine discussing the role community engagement played within clinical trials
This 7 module course offers comprehensive training exploring the wide range of ethical issues faced by health professionals and policy makers working in the context of epidemics/pandemics and disaster situations, focusing primarily on the key areas of research, surveillance and patient care.
Academic Literature: Lessons from the West Africa Ebola Epidemic: A Systematic Review of Epidemiological and Social and Behavioural Science Research Prioritiesby S. A. Abramowitz, D. B Hipgrave, A. Witchard, D. L. Heymann, Mesh Editorial Team
This literature review compared epidemiological research (EPI) with qualitative social and behavioural science research (SBS) published during the West African Ebola epidemic.
Literature: The Communication and Community Engagement Response to Ebola, 2014-2015: Evidence and Lessons for Future Global Health Crisesby Mesh Editorial Team, D. Nabarro et al, 2017
Report: Generating some Minimum Quality Standards and Indicators for Community Engagement for Development and Humanitarian Practice in a Health Emergency : An Interview with Jamie Bedsonby Mesh Editorial Team
Report: UNICEF Consultation with Partners to Develop Standards and Indicators for Community Engagementby Mesh Editorial Team
Project Report: More Deadly than War: Spanish Flu and the Threat of Pandemic, an exhibition at Torquay Museum, UKby Mesh Editorial Team
Literature: Building the legacy of Ebola: Survivors, health systems and a blueprint for research and developmentby The WHO, Mesh Editorial Team
Academic Literature: Word of Mouth: Learning from Polio Communication and Community Engagement Initiatives - Insights and Ideas to Accelerate Action on Other Development Issuesby USAID Maternal Child Survival Program, Mesh Editorial Team
Project Report: An Exploration of the Lived Experience of African Journalists during the 2014 Ebola Crisisby World Federation of Science Journalists, Mesh Editorial Team
Project Report: World Mosquito Day Community Festival to raise awareness of mosquito vectors in local communitiesby Leonardo Ortega-López, Mesh Editorial Team
Academic Literature: Conventional Wisdom versus Actual Outcomes: Challenges in the Conduct of an Ebola Vaccine Trial in Liberia during the International Public Health Emergencyby Larson et al 2017, Mesh Editorial Team
This paper is an assessment of a phase II, randomized controlled trial of an Ebola vaccine undertaken in Liberia during the 2014-15 West African outbreak.
Academic literature: Trust, fear, stigma and disruptions: community perceptions and experiences during periods of low but ongoing transmission of Ebola virus disease in Sierra Leone, 2015by Nuriddin et al, 2018, Mesh Editorial Team
This paper summarises a project based in Sierra Leone during the 2014-15 Ebola outbreak that produced a set of culturally contextualised Ebola messages. The messages are based on findings from interviews and focus group discussions with community members from two Ebola ‘hot-spots’.
Academic Literature: Enablers and Barriers to Community Engagement in Public Health Emergency Preparedess: A Literature Reviewby Ramsbottom, A., et al 2017, Mesh Editorial Team
Academic Literature: 'Super Special Moms': Grassroots, social media support group aids the response to congenital Zika syndromeby Mesh Editorial Team
This paper briefly summarises the discussion of a committee which aimed to assess clinical trials conducted in Guinea, Sierra Leone and Liberia during the 2014-15 Ebola outbreak in West Africa.
Literature: From ‘Trial Community’ to ‘Experimental Publics’: How Clinical Research Shapes Public Participationby C. Montgomery & R. Pool, Mesh Editorial Team
This article argues for a conceptual shift away from the static, singular term ‘trial community’ towards ‘experimental publics’. The authors observe that the term ‘community’ is often employed uncritically and assumes that ‘communities’ pre-exist research; that they are timeless and undifferentiated wholes. ‘Experimental publics’, by contrast, are dynamic, multiple, and impermanent in nature.
On the 15th May, the John Hopkins Center for Health Security hosted Clade X, a pandemic tabletop exercise. The exercise was designed to illustrate high-level strategic decisions and policies needed to prevent a severe pandemic or diminish its consequences should prevent fail. The exercise was streamed live and can still be accessed through this article.
This article, by Wilkinson et al. 2017, deconstructs notions of 'community', and the ways it is conceptualised and understood, in order to critically reflect upon methods of engaging 'communities' during the west African Ebola epidemic in 2014.
This short podcast examines the role provided by engagement practitioners in preparing for and responding to epidemic outbreak.
This article analyses media coverage and public communications over the time of the Ebola outbreak in West Africa 2013-2016 with a focus on the interations between scientifically grounded information and messages from cultural and religious actors.
A Case Study: In 2012 the Oxford University Clinical Research Unit (OUCRU) was awarded £29,999 from the Wellcome Trust International Engagement Awards over three years to implement an engagement project alongside its Vietnam Initiative on Zoonotic Infections (VIZIONS). The project uses simple digital storytelling techniques to bring to the surface the participants’ ideas about personal and public risk and perceptions of disease and transmission.