This webinar held in May 2022 on the REAL Community Engagement Realist Review shared some fascinating findings which give more conceptual clarity around how community engagement works in practice. It highlighted some key relationships and power dynamics at the heart of engagement work.
This learning resource, from the UK's NIHR published in collaboration with the Institute of Development Studies, discusses the ethical dimensions to consider when engaging communities and involving patients in global health research. It was published in July 2021 reflecting on the COVID-19 pandemic.
This policy briefing from The Nuffield Council on Bioethics sets out the key ethical considerations relevant to public health measures being introduced to manage the COVID-19 pandemic in the UK.
The considerations presented in this document have been developed by the WHO Department of Mental Health and Substance Use as a series of messages that can be used in communications to support mental and psychosocial well-being in different target groups during the COVID-19 pandemic
This Nuffield Council on Bioethics report from January 2020 contains the findings of a two year in-depth inquiry. The aim was to identify ways in which research can be undertaken ethically during emergencies, in order to promote the contribution that ethically-conducted research can make to improving current and future emergency preparedness and response.
The Global Code of Conduct for Research in Resource-Poor Settings aims to stop the export of unethical research practices to low and middle income countries.
Researchers funded by the NIHR Global Health Research Programme are expected to involve patients and the public in planning, implementation and evaluation of their research. This resource guide provides community engagement links, resources, references and learning to offer research teams and funding applicants a starting point
This 7 module course offers comprehensive training exploring the wide range of ethical issues faced by health professionals and policy makers working in the context of epidemics/pandemics and disaster situations, focusing primarily on the key areas of research, surveillance and patient care.
Academic Literature: Whose knowledge counts? Exploring cognitive justice in community-university collaborations.by Siân Aggett, Mesh Editorial Team
Engaging with Social justice: An Interview with Ceri Davies, Research Director, National Centre for Social Researchby Siân Aggett, Mesh Editorial Team
This paper briefly summarises the discussion of a committee which aimed to assess clinical trials conducted in Guinea, Sierra Leone and Liberia during the 2014-15 Ebola outbreak in West Africa.
This report, commissioned by the Wellcome Trust in 2006, presents the results of qualitative research exploring public attitudes towards the governance of biomedical research.
The Wellcome Trust commissioned report from 2013 on the general public’s attitudes to different types of personal data and data linking. The research looked at whether health data are viewed differently from other types of data, and what are the perceived risks and benefits, to self and society, of linking different kinds of data for research and other purposes.
This paper may be of interest to readers thinking about the local political and historical context and how this impacts on both science culture and the culture of science communication or public engagement within a country. This article focuses on South Africa although many of the considerations within it are likely to be pertinent in other countries which experienced colonialism.
Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholdersby Spencer G Denny, Blessing Silaigwana, Douglas Wassenaar, Susan Bull, mparker
This qualitative study examined the perceptions, experiences and concerns of 32 research stakeholders about data-sharing practices.
Red Cross's Jemilah Mahmood Offers 5 Principles for Improved Community Engagement During Humanitarian Actionby Mesh Editorial Team
Dr. Jemilah Mahmood, undersecretary general of the International Federation of Red Cross and Red Crescent Societies gave the keynote at the Medicine Sans Frontiere annual Scientific Day 2017. Her message was that humanitarian work needs to work far closer with local populations before, during and after humanitarian action. She emphasises five key principles to achieving this all of which would be relevant to those working in engagement with research in low income settings as well as humanitarian aid workers.
Photovoice Ethics is a report and ethical guide for researchers who want to explore sensitive topics with their audiences.
A summary of a report exploring Community Engagement, what it means to global health researchers and its relationship to research ethics.