Academic Literature: Conventional Wisdom versus Actual Outcomes: Challenges in the Conduct of an Ebola Vaccine Trial in Liberia during the International Public Health Emergencyby Larson et al 2017, Mesh Editorial Team
Academic literature: Trust, fear, stigma and disruptions: community perceptions and experiences during periods of low but ongoing transmission of Ebola virus disease in Sierra Leone, 2015by Nuriddin et al, 2018, Mesh Editorial Team
This article, by Wilkinson et al. 2017, deconstructs notions of 'community', and the ways it is conceptualised and understood, in order to critically reflect upon methods of engaging 'communities' during the west African Ebola epidemic in 2014.
Literature: Research Report - An Exploration of the Lived Experience of African Journalists During the 2014 Ebola Crisisby Mesh Editorial Team
This research report from the World Federation of Science Journalists explores the lived experience of African journalists during the 2014 Ebola crisis in West Africa with the aim of highlighting key professional, technological and social aspects required for effective journalism during emergency and post-outbreak periods.
Literature: Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme (Kilifi, Kenya)by Mesh Editorial Team
An article published in Social Science & Medicine summarising the rationale for community engagement in research. The article draws upon published literature and local findings to outline the process of community engagement in Kilifi, Kenya and to describe issues emerging from its development and early implementation. It also briefly reviews literature on Community Advisory Boards and a range of related ethical, methodological and contextual issues related to developing effective methods for community engagement.
Literature: The Cooking and Pneumonia Study (CAPS) in Malawi: A Nested Pilot of Photovoice Participatory Research Methodologyby Jane Ardrey, Nicola Desmond, Rachel Tolhurst, Kevin Mortimer
In January 2015, the use of Photovoice as a participatory research methodology was piloted at the Cooking and Pneumonia Study Chikhwawa site in Malawi. Photovoice is a photographic technique that allows communities (including women and marginalised groups) to share knowledge about their perspectives and priorities.
Literature: Engaging diverse communities participating in clinical trials: case examples from across Africaby Mesh Editorial Team
This article focuses on community engagement activities employed at various AMANET-supported clinical trial sites in different countries, highlighting subtle differences in the approaches used. The paper also gives some general pros and cons of community engagement.
Literature: Trust and Health Research in Developing Countries: Summary of the issues (Wellcome Trust, 2013)by Wellcome Trust
This literature review was written by Dorcus Kamuya for the Wellcome Trust's fifth international engagement workshop. It focuses on trust in the context of health research in developing countries and highlights a range of challenges affecting levels of trust.