Welcome - Trust (Mesh-Literature)

Literature: Trust and Health Research in Developing Countries: Summary of the issues (Wellcome Trust, 2013)

This literature review was written by Dorcus Kamuya for the Wellcome Trust's fifth international engagement workshop. It focuses on trust in the context of health research in developing countries and highlights a range of challenges affecting levels of trust.

Report: Trust Me I am a Scientist: Exploring the role of trust within international health research

This report is based on conversations that took place at the Fifth Wellcome Trust International Public Engagement Workshop ‘Trust Me I Am a Scientist: Exploring the role of trust within international health research’, held in November 2013. The workshop aimed to reach a clearer understanding of what is involved in developing and maintaining trust among relevant actors and groups engaged in international biomedical research, and the implications of this for strengthening community and public engagement strategies.

Published Literature: Ebola-related stigma in Ghana: Individual and community level determinants

Although Ebola-related stigmatization continues to undermine efforts to re-integrate survivors, few studies have examined what influences such stigmatizing attitudes. This paper explores the effects of both individual- and community-level factors on Ebola-related stigma in Ghana.

Event: EBODAC Colloquium 2020

This series of pre-recorded panel discussions form part of EBODAC's virtual event exploring acceptance and uptake of new Ebola vaccines. They include sessions on 'Trust & Community Engagement' as well as 'Rumour Management'. 

Seminar: COVID-19 vaccination in an era of vaccine hesitancy

This seminar, held in October 2020, explores vaccines hesitancy and what effect it will have on the development and roll-out of a potential COVID-19 vaccine. Chaired by Katherine Littler, Co-Lead, Global Health Ethics & Governance Unit at WHO.

Academic Literature: Whose knowledge counts? Exploring cognitive justice in community-university collaborations.

Literature: The role of community engagement for participation in mass antimalarial administration. Findings from Targeted Malaria Elimination studies in Lao PDR (Laos).

This article summarises the findings of three separate research papers by Adhikari et al., which explore the role of community engagement for participation in mass antimalarial administration during a Targeted Malaria Elimination (TME) projects in Lao PDR (Laos).

Literature: Elements of effective community engagement: lessons from a targeted malaria elimination study in Lao PDR (Laos)

This article draws on experience of designing and implementing community engagement in Laos for Targeted Malaria Elimination (TME). It identifies five key elements of effective community engagement for mass antimalarial administration in this setting.

Literature: Factors associated with population coverage of targeted malaria elimination (TME) in southern Savannakhet Province, Lao PDR (Laos)

This article reports the findings of a quantitative study conducted after the completion of a Targeted Malaria Elimination (TME) project in Lao PDR (Laos). The study aimed to explore reasons for individuals’ participation in the TME project. 

Literature: Why do people participate in mass antimalarial administration? Findings from a qualitative study in Nong District, Savannakhet Province, Lao PDR (Laos).

This article draws on qualitative data to explore the factors that led to high population coverage (>87%) of mass drug administration (MDA) as part of targeted malaria elimination (TME)* in the Greater Mekong sub-region of South East Asia. It looks at the community engagement and education activities (including health education through theatre, posters, village meetings, and house-to-house visits) were undertaken to promote the uptake of MDA in target communities.

Published Literature: Public Attitudes to Personal Data and Linking Personal Data (2013)

The Wellcome Trust commissioned report from 2013 on the general public’s attitudes to different types of personal data and data linking. The research looked at whether health data are viewed differently from other types of data, and what are the perceived risks and benefits, to self and society, of linking different kinds of data for research and other purposes.

Literature: People’s Knowledge and Participatory Action Research Book

Organisations that undertake research, engagement and policy work are dominated by white middle-class men. The basic question the book attempts to answer is: "what happens when these institutions attempt working with the rest of the world, which is different and diverse?”

Literature: Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme (Kilifi, Kenya)

An article published in Social Science & Medicine summarising the rationale for community engagement in research. The article draws upon published literature and local findings to outline the process of community engagement in Kilifi, Kenya and to describe issues emerging from its development and early implementation. It also briefly reviews literature on Community Advisory Boards and a range of related ethical, methodological and contextual issues related to developing effective methods for community engagement.

Literature: Engaging diverse communities participating in clinical trials: case examples from across Africa

This article focuses on community engagement activities employed at various AMANET-supported clinical trial sites in different countries, highlighting subtle differences in the approaches used. The paper also gives some general pros and cons of community engagement.