Project Report: Community Engagement in the Collaborative African Genomics Network (CAfGEN)
by Thato Vinette Regonamanye, Dr. Mogomotsi MatshabaThe Collaborative African Genomics Network (CAfGEN) is a H3Africa affiliate and National Institutes of Health (NIH) funded study coordinated at Botswana-Baylor Children’s Clinical Centre of Excellence. This article describes their approach to community engagement.
Guide: Top Tips for Supporting Engagement through Seed Funding schemes
by Wellcome Africa & Asia Programmes, Mesh Editorial TeamThis guide is authored by public engagement staff across Wellcome Africa & Asia programmes and it shares their learning from setting up and running seed funding grant schemes to support engagement projects embedded in research
This report from the Wellcome Trust DBT India Alliance, published in May 2021, describes the results from an online survey carried out in 2020 looking at understanding of, participation in and attitudes towards engagement in their grantees
Guide: Essential Principles & Practices for GPP Compliance: Engaging stakeholders in biomedical research during the era of COVID-19
by Mesh Editorial TeamThis tool from AVAC in intended to help guide stakeholder engagement in COVID-19 research. Built from the Good Participatory Practice Guidelines for Biomedical HIV Prevention Trials (GPP), it responds to needs expressed by both researchers and advocates.
Guide: UNICEF Minimum Quality Standards and Indicators in Community Engagement
by Mesh Editorial TeamUNICEF C4D's Minimum quality standards and indicators in community engagement provide globally established guidance on the contribution of community engagement in development practice as well as humanitarian action.
Guide: WHO R&D Good Participatory Practice for COVID-19 clinical trials: a toolbox
by Mesh Editorial TeamThis toolbox was developed in 2020 for the World Health Organisation COVID-19 Research Roadmap and provides a synthesis of key action points from the WHO GPP-EP guidelines. This “how to” guide gives an overview, tips and resources and will be updated as new resources are completed and approved.
Policy Briefing: Responding to the COVID-19 pandemic: ethical considerations
by Mesh Editorial Team, Nuffield Council on BioethicsThis policy briefing from The Nuffield Council on Bioethics sets out the key ethical considerations relevant to public health measures being introduced to manage the COVID-19 pandemic in the UK.
Literature: Trust and Health Research in Developing Countries: Summary of the issues (Wellcome Trust, 2013)
by Wellcome TrustThis literature review was written by Dorcus Kamuya for the Wellcome Trust's fifth international engagement workshop. It focuses on trust in the context of health research in developing countries and highlights a range of challenges affecting levels of trust.
This paper, published in January 2021 in Frontiers in Public Health, delves into stigma associated with the COVID-19 pandemic among different social groups in the Indian society and the mounting cases of prejudice based on race, class, and religion. It also presents insights into the varied manifestations, and the deleterious consequences of COVID-19 inspired othering brought to its potential targets in India.
U.S-based non-profit AVAC, is offering a useful set of webinars and resources looking at how rapid COVID-19 research can benefit from the lessons learned in the fight against HIV - including the importance of applying good participatory practice guidelines to ensure research is effective and inclusive
Report: Trust Me I am a Scientist: Exploring the role of trust within international health research
by Mesh Editorial Team, Wellcome TrustThis report is based on conversations that took place at the Fifth Wellcome Trust International Public Engagement Workshop ‘Trust Me I Am a Scientist: Exploring the role of trust within international health research’, held in November 2013. The workshop aimed to reach a clearer understanding of what is involved in developing and maintaining trust among relevant actors and groups engaged in international biomedical research, and the implications of this for strengthening community and public engagement strategies.
The Good Participatory Practice (GPP) Online Training Course is a four-month, hands-on eLearning experience that brings the GPP Guidelines to life through interactive online content, case studies, work assignments and online discussions.
Guide: WHO guidelines on Good Participatory Practice for Trials of Emerging Pathogens (GPP-EP)
by Mesh Editorial Team, Dr Catherine HankinsGPP-EP were prepared in 2016 by the WHO to support prevention and treatment trials of emerging (and re-emerging) pathogens that were likely to cause severe outbreaks. The guidelines address how to engage community stakeholders and promote ethical standards throughout the research process.
Guide: WHO Working with Community Advisory Boards for COVID-19 related clinical studies
by World Health Organisation, Mesh Editorial TeamThis toolbox was developed for the World Health Organisation COVID-19 Research Roadmap and shares information on establishing and working with different types of Community Advisory Boards/Groups (CAB/Gs) in the context of COVID-19 clinical studies.
This tool, developed by the site staff of the Microbicide Development Program in Tanzania, can be used to help community, trial participants, or staff members, prioritize issues and concerns central to the trial. This tool can serve as a platform to generate a list of potential issues and provide direction for what or which issues should take priority at the research site.
Using this tool, participants can raise and explore issues they perceive as priorities in HIV prevention research; discovering links between them. An interactive and fun way for community members and participants to be involved with the planning of HIV prevention research at the site.
GPP Strengths and Gaps is a facilitator’s guide for an exercise that is designed to help evaluate GPP implementation at a site level. It can be used with community and trial participants to garner honest feedback and constructive suggestions for improvements.
The AVAC Stakeholder Interview Questions is a tool that is designed for trial site staff. It guides members of the research team through the process of conducting a one-on-one interview with a stakeholder. The tool provides guidance for talking with many different types of stakeholders. It can be used to evaluate the impact of stakeholder engagement efforts.
The GPP Trial Site Binder is a companion tool to the Good Participatory Practice guidelines that research teams can use to help develop, organize and document the stakeholder engagement activity at the site. The binder is is divided into sixteen sections aligned with the guidelines. Each section contains key steps to help research staff follow the practices, templates for documenting and planning activities, and a place to file draft documents.
The GPP Blueprint is a companion to the Good Participatory Practice guidelines for biomedical HIV prevention research. It is a step-by-step guide designed for the research team members in charge of stakeholder engagement. It presents questions, worksheets and explanations that can guide and generate a stakeholder engagement plan for a specific trial or research program.