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Project Report: The Sickle Cell Heroes Comic Book: the patient’s perspective in Kenya

Patients with sickle cell disease and their families often face challenges due to a lack of understanding and stigma related to the disease in their communities. In this project, funded by the DELTAS Africa CPE Seed Fund, a comic book of stories inspired by the experiences of children with SCD was made to raise awareness of SCD and the importance of research.

Project Report: The Silent Plague: raising awareness of antibiotic-induced hearing loss in Nigeria

In this article, Dr Adebolajo Adeyemo describes his community and public engagement project, supported by the DELTAS Africa CPE Seed Fund, in which he aimed to raise awareness of aminoglycoside-induced hearing loss through the creation of a Nollywood movie, in Nigeria.

Project Report: The Sciback-skit programme: Engaging young people as malaria ambassadors in Kenya

In this project from the International Centre of Insect Physiology and Ecology in Kenya and funded by the DELTAS Africa CPE Seed Fund, high school students were educated about malaria and scientific research, to inspire them to become ambassadors in their communities, and to go on to have careers in science.

Project Report: Scrutinized: Harnessing adolescence advocacy to end TB in Botswana

This project from Botswana-Harvard AIDS Institute Partnership, supported by the DELTAS Africa CPE Seed Fund, used storytelling and film to explore perceptions and attitudes to HIV/TB in schools in Gaborone, Botswana

eLearning: Lifeology flashcard courses

Lifeology is an online platform and communication tool that engages broader audiences in science, health and research in a fun, accessible way. They do this via beautifully illustrated, science-backed, bite-sized “flashcard” courses.

Project Report: Community Engagement in the Collaborative African Genomics Network (CAfGEN)

The Collaborative African Genomics Network (CAfGEN) is a H3Africa affiliate and National Institutes of Health (NIH) funded study coordinated at Botswana-Baylor Children’s Clinical Centre of Excellence. This article describes their approach to community engagement.

Guide: Top Tips for Supporting Engagement through Seed Funding schemes

This guide is authored by public engagement staff across Wellcome Africa & Asia programmes and it shares their learning from setting up and running seed funding grant schemes to support engagement projects embedded in research

Report: Perspectives on Public Engagement with Science in India

This report from the Wellcome Trust DBT India Alliance, published in May 2021, describes the results from an online survey carried out in 2020 looking at understanding of, participation in and attitudes towards engagement in their grantees

Guide: Essential Principles & Practices for GPP Compliance: Engaging stakeholders in biomedical research during the era of COVID-19

This tool from AVAC in intended to help guide stakeholder engagement in COVID-19 research. Built from the Good Participatory Practice Guidelines for Biomedical HIV Prevention Trials (GPP), it responds to needs expressed by both researchers and advocates.

Guide: UNICEF Minimum Quality Standards and Indicators in Community Engagement

UNICEF C4D's Minimum quality standards and indicators in community engagement provide globally established guidance on the contribution of community engagement in development practice as well as humanitarian action.

Guide: WHO R&D Good Participatory Practice for COVID-19 clinical trials: a toolbox

This toolbox was developed in 2020 for the World Health Organisation COVID-19 Research Roadmap and provides a synthesis of key action points from the WHO GPP-EP guidelines. This “how to” guide gives an overview, tips and resources and will be updated as new resources are completed and approved.

Policy Briefing: Responding to the COVID-19 pandemic: ethical considerations

This policy briefing from The Nuffield Council on Bioethics sets out the key ethical considerations relevant to public health measures being introduced to manage the COVID-19 pandemic in the UK.

Literature: Trust and Health Research in Developing Countries: Summary of the issues (Wellcome Trust, 2013)

This literature review was written by Dorcus Kamuya for the Wellcome Trust's fifth international engagement workshop. It focuses on trust in the context of health research in developing countries and highlights a range of challenges affecting levels of trust.

Published Literature: Stigma and Discrimination During COVID-19 Pandemic

This paper, published in January 2021 in Frontiers in Public Health, delves into stigma associated with the COVID-19 pandemic among different social groups in the Indian society and the mounting cases of prejudice based on race, class, and religion. It also presents insights into the varied manifestations, and the deleterious consequences of COVID-19 inspired othering brought to its potential targets in India.

Guide: AVAC: COVID-19 and HIV

U.S-based non-profit AVAC, is offering a useful set of webinars and resources looking at how rapid COVID-19 research can benefit from the lessons learned in the fight against HIV - including the importance of applying good participatory practice guidelines to ensure research is effective and inclusive

Report: Trust Me I am a Scientist: Exploring the role of trust within international health research

This report is based on conversations that took place at the Fifth Wellcome Trust International Public Engagement Workshop ‘Trust Me I Am a Scientist: Exploring the role of trust within international health research’, held in November 2013. The workshop aimed to reach a clearer understanding of what is involved in developing and maintaining trust among relevant actors and groups engaged in international biomedical research, and the implications of this for strengthening community and public engagement strategies.

Training: AVAC GPP Online Training Course

The Good Participatory Practice (GPP) Online Training Course is a four-month, hands-on eLearning experience that brings the GPP Guidelines to life through interactive online content, case studies, work assignments and online discussions.

Guide: WHO guidelines on Good Participatory Practice for Trials of Emerging Pathogens (GPP-EP)

GPP-EP were prepared in 2016 by the WHO to support prevention and treatment trials of emerging (and re-emerging) pathogens that were likely to cause severe outbreaks. The guidelines address how to engage community stakeholders and promote ethical standards throughout the research process. 

Guide: WHO Working with Community Advisory Boards for COVID-19 related clinical studies

This toolbox was developed for the World Health Organisation COVID-19 Research Roadmap and shares information on establishing and working with different types of Community Advisory Boards/Groups (CAB/Gs) in the context of COVID-19 clinical studies.

Toolkit: AVAC GPP Listing, Scoring, Ranking Tool

This tool, developed by the site staff of the Microbicide Development Program in Tanzania, can be used to help community, trial participants, or staff members, prioritize issues and concerns central to the trial. This tool can serve as a platform to generate a list of potential issues and provide direction for what or which issues should take priority at the research site.