This article shares documents on working with journalists and the media from the perspective of a research programme, including through Media Advisory Groups and a Journalists in Residence program
Project Report: Clinical and Genetic Studies of Hereditary Neurological Disorders in Mali
by Guida Landouré, Mesh Editorial TeamThis project used focus group discussions, individual interviews and community meetings to explore stigma around hereditary neurological diseases in Mali.
Project Report: The Genomics of Schizophrenia in South African Xhosa people (SAX) study
by Megan Campbell, Adele PretoriusThe Genomics of Schizophrenia in South African Xhosa People (SAX) study sought to identify genes or mutations underlying predisposition to schizophrenia in the South African Xhosa population. Engagement activities included a Community Advisory Board and a Mental Health Literacy Day.
Project Report: Exploring perspectives on genomics and sickle cell public health interventions in Cameroon
by Kengne Kamga Karen, Valentine Bitoungui, Abagma Mani, Meya Melanie, Ongey Foncham, Marsha Treadwell, Ambroise WonkamThis project used qualitative methods to gather an in-depth understanding of cultural influences on perspectives and attitudes regarding genomic research and public health interventions for Sickle Cell Disease-related complications in Cameroon
The Human Heredity and Health in Africa (H3Africa) consortium's Community Engagement Working Group was established in 2015. They have developed preliminary Guidelines on CE to support genetics and genomics research
Published Report: Research in global health emergencies
by Mesh Editorial Team, Nuffield Council on BioethicsThis Nuffield Council on Bioethics report from January 2020 contains the findings of a two year in-depth inquiry. The aim was to identify ways in which research can be undertaken ethically during emergencies, in order to promote the contribution that ethically-conducted research can make to improving current and future emergency preparedness and response.
Although these Good Participatory Practice (GPP) Guidelines were developed by AVAC and UNAIDS for HIV prevention trials, they are valuable to clinical trials across fields, research areas, geographies and populations.
Guide: TB Alliance Good Participatory Practice Guidelines for TB Drug Trials (GPP-TB)
by Mesh Editorial Team, Critical Path to TB Drug RegimensProviding guiding principles and practice standards for stakeholder engagement as an integral part of TB drug trials. Stakeholder engagement refers to any form of consultation, collaboration, and partnership put in place to enable a dialogue between all parties having a stake in a specific trial.
This study published by Wellcome in 2021 explores the role, benefits and potential of young people’s involvement in health research, with a focus on mental health, infectious diseases and global heating. It provides recommendations on how to meaningfully involve young people in research, and what it means to do that well.
The SciCommer is a weekly global science communication newsletter created by Heather Doran - a Science Communication and Public Engagement specialist based in Scotland. It provides a weekly roundup of science communication news and events, including academic research in the area, conferences, festivals, training and job opportunities.
Published Literature: Reflections on running an International Public Health Film Competition
by Mesh Editorial Team, kartiksharmaThis paper describes an International Public Health Film Competition held in 2020 during the COVID-19 pandemic and shares learning from the process for future film festivals
Published Literature: Science Communication Research: an Empirical Field Analysis
by Mesh Editorial TeamThis in-depth empirical analysis of the research field in science communication published in 2020 looks both at strengths and weaknesses of research in the field, and a reflects on its future needs and perspectives.
Unicef's Vaccine Misinformation Management Field Guide was published in December 2020 and offers guidance for addressing a global infodemic and fostering demand for immunisation.
Published Report: Supporting Strong Engagement Practice in Clinical Trials
by Mesh Editorial Team, Sian AggettThis report from Hilo Consultants Ltd outlines the key themes arising from a workshop session held in October 2020 which sought to look at ways of supporting strong practice in engagement within clinical trials.
Developed in Kenya, this toolkit can be used to support engagement with vaccine studies and particularly for COVID-19. These illustrated slides give a simplified scientific explanation of vaccine development, including the sequence and timeline for clinical studies, ethical review and randomisation.
Project Report: Understanding silenced and gendered health experiences and the impact on access
by Devi Leena Bose, Paromita Saha, Kashma Goyal, Joyeeta Mukherjee, Saif ul HadiThis reports on the The International AIDS Vaccine Initiative's community consultation workshop which aimed to contribute to a better understanding of gender contestations with regards to access to health and participation in biomedical research. They describe how they used body-maps, sharing circles and roadblock/hurdle mapping excercises to explore the topics of the workshop.
This series of pre-recorded panel discussions form part of EBODAC's virtual event exploring acceptance and uptake of new Ebola vaccines. They include sessions on 'Trust & Community Engagement' as well as 'Rumour Management'.
Project Report: Bate Papo Vacina! (Let’s get vaccinated!)
by Emily Lawrence, Jenny Payne, Bvudzai MagadzireThis blog style project reflection from Village Reach gives an introduction to the different aspects of their research project exploring barriers to vaccination in Mozambique.
The Global Code of Conduct for Research in Resource-Poor Settings aims to stop the export of unethical research practices to low and middle income countries.
This seminar, held in October 2020, explores vaccines hesitancy and what effect it will have on the development and roll-out of a potential COVID-19 vaccine. Chaired by Katherine Littler, Co-Lead, Global Health Ethics & Governance Unit at WHO.